Don't know what to think

I was diagnosed with TS in July of 2010. When I went to my family practice doctor after the diagnosis all he could say "well, at least we know what you have, and you have been living with it your whole life so nothing will change." This was frustrating because I had questions and concerns. I feel like all my doctors don't care. I feel lost, frustrated, and not know what can and could happen. I have a whole lot of questions but no one seems to know the answers or won't answer. I wish I had other people with ts that i can talk too.