DIAGNOSES
HI JOURNAL,
MY BEST FRIEND LIVES WITH AND ENDURES,
A CONDITION CALLED 'GENERALISED DYSTONIA'.
AT FIRST GLANCE IT WOULD APPEAR TO MY EXPERIENDED,
YET UNQUALIFIED MIND THAT HE HAS THE SAME,
CONDITION I HAD BEFORE DBS, NAMELY DYSKINESIA.
THE CONDITION MY FRIEND HAS IS VERY RARE INDEED AND,
THERE IS NO TREATMENT FOR IT.
DAIGNOSES IS CLINICALLY MADE, AS IS PARKINSON'S.
THERE ARE OTHER CONDITIONS WHICH,
CAN BE MISTAKEN TO BE PARKINSON'S.
BECAUSE OF THIS,
MY OWN LOCAL SUPPORT GROUP,
WITH IT'S VAST KNOWLEDGE AND LONG REACH,
WILL NOT ADVISE TILL A DIAGNOSES,
HAS BEEN MADE BY A NEUROLOGIST.
THIS MOST CERTAINLY MAKES SENSE TO ME.
.
Replies
I am sorry about your friend.... I wish him the best of luck!!!! I hope he has a positive attitude like you....
I think support groups sure could tell what they have read or point the person to a website to read on. I personally would not feel bad about doing that especially since you have had PD for so long. You probably know more then most drs do at this point. =)