CT scan
I got the results of the ct scan today and partial results back from the blood work..(ct>)"No major abnormalities, none cancerous,..granular/gran..something or other....nothing to be worried about.." (labs>) "but we don't know what is causing the enzymes to be so high. We wouldn't expect to see levels this high even if you inhaled a whole can of raid pesticide. We will be checking for another viral infection and hoping that it is not some form of auto immune disorder caused by the tx. "
Pardon me but did I hear that wright "CAUSED BY THE TX." !!!!!!! W.T.F.!!!
And did I mention the tx FAILED.?!?!?!?!
Okay, that being said, I was also told that I am advised NOT to do the SOC tx again because it involves the same meds for a whole year and since I didn't achieve SVR this time, most likely wouldn't the next time. ughhhh.! I was told that I would have a better chance with the new drugs that may be just three or four years out and that the incivec, teleprevir, just didn't seem like a good choice right now due to the combination with interferon and my hard time with that before. So now I guess the next piece of the puzzle is, what do you do about the climbing enzyme levels. In four days the AST went from 567 to 603...and the ALT from 887 to 1108. I guess that's up to the docs to figure out.
I guess I'm a little worried that things could get real bad real fast and then there may not be an option to wait four years.
What if I had waited for the new stuff to come out first ? What if we didn't go poking around the hornets nest and get things all fucked up ? Who the fuck knows. All I know is that I was willing to try, gave it a shot and this is what I got. Every bit of this is by my choice all the way back to the day I was riding my M.C. drunk got in a wreck and had to be given blood... Drunk..my choice. Or maybe it was those stupid days with drugs....drugs..my choice. POINT IS,,I OWN IT!!! What ever the outcome it's mine.
Not going to beat myself up anymore tonight. It is in the hands of GOD and the people who he has given the wisdom to fight this disease to help me get better. If not then that is the way it was meant to be.
Ironically..I'm going to my Aunts living wake this Saturday. She has an incurable Heart condition and lupus and she has been moved home to just live in peace till the end. That just seems inspiring to me. We are having a BBQ and get together. First one for me. Should be real interesting.
Swimming deeper into the unknown
Tim
Pardon me but did I hear that wright "CAUSED BY THE TX." !!!!!!! W.T.F.!!!
And did I mention the tx FAILED.?!?!?!?!
Okay, that being said, I was also told that I am advised NOT to do the SOC tx again because it involves the same meds for a whole year and since I didn't achieve SVR this time, most likely wouldn't the next time. ughhhh.! I was told that I would have a better chance with the new drugs that may be just three or four years out and that the incivec, teleprevir, just didn't seem like a good choice right now due to the combination with interferon and my hard time with that before. So now I guess the next piece of the puzzle is, what do you do about the climbing enzyme levels. In four days the AST went from 567 to 603...and the ALT from 887 to 1108. I guess that's up to the docs to figure out.
I guess I'm a little worried that things could get real bad real fast and then there may not be an option to wait four years.
What if I had waited for the new stuff to come out first ? What if we didn't go poking around the hornets nest and get things all fucked up ? Who the fuck knows. All I know is that I was willing to try, gave it a shot and this is what I got. Every bit of this is by my choice all the way back to the day I was riding my M.C. drunk got in a wreck and had to be given blood... Drunk..my choice. Or maybe it was those stupid days with drugs....drugs..my choice. POINT IS,,I OWN IT!!! What ever the outcome it's mine.
Not going to beat myself up anymore tonight. It is in the hands of GOD and the people who he has given the wisdom to fight this disease to help me get better. If not then that is the way it was meant to be.
Ironically..I'm going to my Aunts living wake this Saturday. She has an incurable Heart condition and lupus and she has been moved home to just live in peace till the end. That just seems inspiring to me. We are having a BBQ and get together. First one for me. Should be real interesting.
Swimming deeper into the unknown
Tim
Replies
Tim I am so sorry... I don\'t know what to say except that I love you my sweet bestest friend! I would love to catch up sometime soon, ((((HUGS))) Lorie
I never heard of a living wake before. Is she conscious to know what\'s going on? as far as your AST and AST, 567 + 603, 887+1108 are not that different clinically. If they had shot up from say 25 to 800, I\'d be more concerned. I\'m not brushing this off as unimportant, it is. They are too high. The doctors NEED to investigate this. Is anything else way off? What are your total prpotein and albumin levels....bilirubin...INR? Those are all tests that can change drastically in liver disease. Keep your FAITH in God. It helps get through the tough times. I\'m sorry this is all happening to you.
Kathy
Other than all this crap you are going through I hope you are feeling pretty good. Bad news sucks but the good news is we are all here for you! Love, Karen
a1, there\'s no reason whatsoever to beat yourself up. you made it through tx. this makes me really angry b/c i think we\'re still be treating like guinea pigs. i hope they can figure this out. it is in the hands of God and my prayers go up right now that you will find competent people to help you through this. hugs and healing! xoxo
Tim, I hear anger, and rightfully so and warranted if this is what u r feeling toatlly acceptable. no judgment here ever. we all did our lives the way we did. I made choices also. i was on deaths door multiple times with overdoses andshould have been dead when i was in my early 20\'s mind u. toatlly straightend out my life, had a career, a home, a family with beautiful children, like god gave meanother chance. then BAM, 2010, i all came backto bite me in the ass! wtf! right? soooo, i did not escape unscathed, and never gave it another thought, was never sick worked one full time 2 partime positions and raised my 3 kids and ran my home.if i tell u barely even a cold, working around sick people day in day out in hospitals,nursing homes,prisons etc. as a nurse. never in my wildest dreams.so u see, we all come from different backgrounds,different lifestyles etc.,but all with the same outcome. so, i don\'t blameu at allforbeing angry,disappointed or whatever it is u r feeling.istillbelieve u r avery couageous person,who took the risk, the chance to save your life. much braver than i,the little chicken shit,who is a strong woman for my children, excellent,compassionate nurse to my patients,but a wimpwhen i comes to me.just notready to lie down with these meds,there just has to be something more humane. I will be 60 years young in november and still feel25 in my heart and head. Don\'tget mewrong,i am mature when i have to be,but there must be a balance as i see it. You will make sense of all this in your time. you were inspirational tome last year about this time as a matter of fact, whan i was absolutely freaking out about this,and for this i will be eternally grateful to you and many of the others, who helped me come to terms with this. I also decided, that this will not rule my life, and although i experience some sadness about all of this, it is also getting older and what lies ahead that gets me down some days. I feel as if i should be doing more than i am,but i just don\'t quite know what that is. anyways, i am getting off topic. I think i should stop now, as i will probably start to not make much sense. I just hope i was able to help u in some way. I am still here, maybe not as often, but ido pop up as you see, from time to time with lots to share and say as u can see...take car...hugs...Laurie