Considering Leaving DS
Over the last couple of months I have been in so much pain and without any Doctor that knows anything about what I am going through ,I did the ask an Expert here at DS a question about Syringomyelia . I thought that it was a simple question but so far haven`t had any responce at all . The question I asked was why is there so many different opinions as to what should be done for SM .I was told by my neurosurgeon that I have three Syrnx in my spinal cord and the one in my C-spine needed to be shunted ,so that was what I had done along with cord detethering which took over 9 hours . I am still in so much pain that each day I wake up and feel like I am not going to be able to even walk . I do have to force myself to do things around the house but sometimes it feels like I am fighting a loosing battle with my body and now even the doctors . I now live in New Mexico where if I do get a consult with a doctor then I have to go through it all over agian and a few have even told me that they don`t want to even talk to me because I have had the shunt and cord deteathered . So I am stuck with no doctor and the problem is always going to be with me . I just don`t know what to do anymore . I am at the point where there is nothing that I can do and no where to turn for help .I can`t drive for any distance at all and it seems like all anyone wants to do to me anymore is to give me injections that don`t work .I say that because I have had a years worth of steroid injections at Texas Tech Spine and Pain Center and even did a nerve block that did nothing .I can`t go back to my neurosurgeon because he was in Denver but moved to California . Rocky Mountain Neurological Alliance is where he used to be at in Denver ,and they are still there but now I am 500 miles away and just can`t make that drive any more . Now my GP is even moving and I am forced to get another GP .Stuck agian with having to find someone that has even the basic awarness about Syringomyelia or having to explain it all over agian . JUST VERY FRUSTRATED !!!!!!!