Borderline pulmonary hypertension
Just diagnosed with this and feeling low. The breathing problems got worse after about in hospital in January . I'm back on the plaquenil and waiting for a ct scan and further lung function tests .
It is weird how fast things can go downhill . I had really bad chest infections for months and lost about 3 stone in weight I managed to get back up to 8 stone but hard to maintain. Breathing problems are far worse and get dizzy and have low blood pressure. I have now had to start using a wheel chair if I want to go out as my walking is so limited. We went on a Med cruise and I realised my limitations very quickly with total exhaustion and breathlessness.
I'm scared and trying to keep everyone else in the family calm is stressing me out.I don't want my daughter to find out as she is currently doing exams at Uni. Hubby told my sister behind my back everything now she's giving me lectures about giving up work using private health care yada yada yada .I needed time to come to terms with things myself and not panic .
It's like losing your last bit of control and taking up your limited energy I think I would get mad but I just don't have the energy .By no means am I giving u I'm just waiting for the tests Monday is the ct scan I've had the echo and they need to reschedule the lung function tests . I see the consultant on Thursday . I think I feel numb in my mind but it's an easier place to be at then trying to keep analysing things . Crikey it is only borderline so what does that actually mean I'm reckoning not critical so alls got to be okish
It's quite cathartic writing this journal I can see the progression of this disease too.
It is weird how fast things can go downhill . I had really bad chest infections for months and lost about 3 stone in weight I managed to get back up to 8 stone but hard to maintain. Breathing problems are far worse and get dizzy and have low blood pressure. I have now had to start using a wheel chair if I want to go out as my walking is so limited. We went on a Med cruise and I realised my limitations very quickly with total exhaustion and breathlessness.
I'm scared and trying to keep everyone else in the family calm is stressing me out.I don't want my daughter to find out as she is currently doing exams at Uni. Hubby told my sister behind my back everything now she's giving me lectures about giving up work using private health care yada yada yada .I needed time to come to terms with things myself and not panic .
It's like losing your last bit of control and taking up your limited energy I think I would get mad but I just don't have the energy .By no means am I giving u I'm just waiting for the tests Monday is the ct scan I've had the echo and they need to reschedule the lung function tests . I see the consultant on Thursday . I think I feel numb in my mind but it's an easier place to be at then trying to keep analysing things . Crikey it is only borderline so what does that actually mean I'm reckoning not critical so alls got to be okish
It's quite cathartic writing this journal I can see the progression of this disease too.
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