Beat Goes On
Feeling a tiny bit stronger. Still having about 3-4 "attacks" a day. Nausea, severe weakness, stomach ache,etc.. Resting is usually an ordeal. Have not felt hardly any relief with daytime rest for about 2yrs.
Some symptoms actually get worse:ie. POTS, postural, head and face burning, palpitations, feel tremors and mouth pain more and anxiety attack. Use classical music, audio Bks, etc..
Finally got some errands done, feels good. Hope my DS friends are hanging in.
Some symptoms actually get worse:ie. POTS, postural, head and face burning, palpitations, feel tremors and mouth pain more and anxiety attack. Use classical music, audio Bks, etc..
Finally got some errands done, feels good. Hope my DS friends are hanging in.
Replies
Feeling a \"tiny bit\" better is a humungous deal, isn\'t it?? So sorry you have that large group of nasty symptoms to deal with. I have the sever weakness, stomach stuff....can\'t sleep...sore throat and headaches that bother me the most. The palpitations I have a medicine for, but I don\'t take it, cuz it lowers my blood pressure more and then I get dizzier.
This is just the stupidest disease EVER! Innit?? xo
We truly sound miserable but it still gives me comfort I am not alone. You have adjusted to alot in far fewer yrs and continue to be a loving blessing to so many. Somehow I managed to get my hair colored and cut this week, buy a much needed winter coat and have a short mtg with friends from my theatre group. I just wish I felt better during some of this. Lately I feel like I may temporarily pass out or get a nausea attack. So hard to explain to a \"normal\" person that your whole life is like this.
Are you trying Gastromend et al?
@DarlaC: Taurine supplements have been found to fix heart rhythm problems such as arrythmia and PVCs. It also reverses congestive heart failure and strengthens heart muscle.
It is a natural amino-acid that is prescribed in Japan but in USA is still neglected as another \"supplement\". You can get reputable brands of it like Swanson and Jarrow from Amazon.
It may have a calming effect so I would suggest taking it before bed. 3000mg or so daily. See if it works after 2 weeks.
Pouty, I know what it\'s like to feel renewed by the smallest relief from symptoms. Being able to do anything seems like a major victory at times! Audiobooks have gotten me through many a difficult day - glad they bring you some comfort as well.