Back to the pain doctor

Well I am back to seeing a pain doctor again .He is wanting to do another nerve burn in my lumbar spine on the left side .I had it done on the right side and it didn't seem to do any good .Although the cramping in the right side of my back has not been as bad . Guess that is some relief . I have had a real problem in going to specalist it is not funny . When we moved back to New Mexico my doctor in Denver said that I needed to get a Neuro surgeon on board down here that could read over my reports and look at my MRI's just in case something went wrong with the shunt in my neck . Well that didn't go over very well . The neuro surgeon for some reason thought that I was doctor hopping thrying to get someone to do surgery ...NOT ..had one surgery don't ever want to go through that again . Any way it didn't turn out good ,I don't ever think he understood what I was trying to do . I did go to see another neurosurgeon in Lubbock ,Tx. and he agreed to see me and wanted all of my MRI's so I sent them after repeatedly telling him that I needed them back for my own records . He sent them to the radiology department in the hospital where he has his practice with a note to send them back to me . They uploaded them into their computer system and promptly DESTROYED them . It took me about a month to find out what had happened to them . I tried to get in touch with my doctor in Denver but the practice is no longer there and all the records have vanished into thin air . No record of where any of the doctors are at either . The neurosurgeon that did my surgery moved to someplace in California . So as you can see I don't feel to good about doctors now . I know at the time they were great ,but where did they all go and why ? In an area where more specalist are needed why can't they keep them around ? Theses two questions are troubling to me and I am sure to lots of other Syringomyelia patients . I know you are saying well why don't you go and get a doctors degree and go into this field...have you looked at what is all wrong with me ??? For starters I have had a veryTramatic brain injury . The doctors that I had on that one said it was getting four concussions and one time and all of the damage done by the contracou concussions was add to that .I probably bounced my head off of at leastfive or more solid surfaces before landing on my face on the pavement . Not a good way to start your day or week ,let me tell you .And then spending the next two years in one rehab after another was not fun either . While suffering from one migraine after another .Thinking at anytime that my head was going to explode .


Well back to the story at hand . I am rel unsure about what is going on with my back ,pain and head . I know that I can't give up . I have to fight this and try to some how get through it .I am getting older and it is harder for me to move around in this broken up and physically abused body .I can't do a lot of things that I want to do . I used to be very good at any kind of sports but now it is painful just getting out of my bed ,which I have not been able to sleep through the night in ,in years .


Well I have had a real fun time in most of my life .Wouldn't trade a minute of the good times .Just wish I could remember what that is like anymore . I have been blessed that I have the greatest wife in the world .We have our adopted nephew/son who has a wonderful wife and son and they are expecting twins (a boy and girl ) in either July or early August .They were told since she is having problems that it may happen either around or on my birthday of July 8th . Keeping my prayers for that to happen because the only thing that seems to happen on my birthday is someone dying . 


I am going to go for now , I will be checking back in from time to time to see houw every one is doing . But it looks like almost all of my friends on here have either left or dropped me from their friends list .God bless you all in your lives .