Aunt Betsy :*(

Here's the word from my cousin re his mother, aka my Aunt Betsy:
Well, as the neurosurgeon put it, "It went as we expected." The most immediately important news is that Mom came through the surgery very well (given the circumstances). We spent as much time as we could with her post-surgery and she has clearly retained her cognitive ability, sense of humour, and overall awareness. Interestingly, she already seems to have more strength in her left leg than she had pre-surgery. When we left her today around 6:30pm she was resting comfortably, but was fatigued and complained a bit of a headache (again, not surprising given the circumstances).Here are some specific results from the surgery. I'll explain it the best that I can, but I'm sure that this won't be 100% technically/medically accurate. As the surgeon expected, the tumor was a glioma and was malignant. [Sarah: :*(] He had to do a "radical resection" of the right frontal lobe to get most of the tumor out. I originally thought that the tumor was almost completely encapsulated, but I guess this wasn't the case. As a result, the surgeon had to take out a significant portion of her frontal lobe to get the tumor. On the one hand, the surgeon said that no unexpected problems arose during the surgery, that they did all they could do from a surgical perspective, and he did expect her to recover well from the surgery. However, given the severity of the procedure, the surgeon told us that he did not expect her to get back to who she was before all this started(emotionally? physically?).Given that there is a high risk of recurrence with glioma tumors, the surgeon recommended that "adjunctive procedures" (e.g., chemotherapy/radiation) would be necessary to deal with what's left. The surgeon is meeting tomorrow (around 11am) with the team of radiologists/oncologists and then we'll all meet (along with Mom) to discuss the path from here on out.
=========
That was from my cousin John.
This is Sarah. I am crushed. I feel so much anguish for my whole family, going through this again. I feel zero innocence or optimism. Only hope for comfort and compassion. I mean, REALLY? We really have this terror in our family, again?  

 

Replies

deleted_user
deleted_user

Oh Sarah. I\'ve no words, but perhaps because your mother is elderly, her cancer will spread less rapidly...? The stages will be less pronounced...? One into another without the attending fear/shock....? You not be witnessing the diminishment of a healthy young man ...?

I am so very sorry. This is simply UNFAIR.

My heart is with you and your family, believe me,

Soosanah
heartsandhands
heartsandhands

It\'s not my mother, it\'s my aunt Betsy. But thank you for your very heartfelt words.
Abotsd
Abotsd

So sorry you\'re going through this nightmare. Hopefully, this time the tumor was found in enough time, the spreading will be very slow, and your Dear Aunt will continue to have the same nice personality. It\'s really too much to go through all this again. I am so sorry you have to endure this. love ya, abby
inmemoryofhattie
inmemoryofhattie

yes, too much when the again comes...there is a lot of degenerative and terminal illness in my family and i know that horrible feeling of no, not again. am sorry you and your family have to deal with this pain and suffering....
deleted_user
deleted_user

This is so sad. I know it is very hard for you to do over again, Sarah...to have a loved one suffer through the surgery, the chemo/radiation and the recovery, not knowing the outcome of it all. I believe the frontal lobe has to do with behavior....I know that if a football/boxer gets repeated hits there it can affect behavior/emotions. I hope for the best of results with your Aunt Betsy. Love and hugs, dale...brandon\'s mom
deleted_user
deleted_user

i awoke this morning, with a heavy heart ... thoughts of Aunt Betsy, thoughts of You Sarah, thoughts of cousin John, thoughts of Andy\'s 17 months, thoughts of JP\'s 13 months, thoughts of all that is witnessed with this disease in the best of silver linings and the worst of cruelty and terror involved, and thoughts of HOPE HOPE HOPE.
Love you \'Rah.
RememberKala
RememberKala

I\'m sorry. This human experience sure beats us up sometimes.... Love and energy being sent to you dear one...and to Aunt Betsy.
deleted_user
deleted_user

Sending prayers for all the family.....
Livingjuicy
Livingjuicy

Oh, Sarah... this is just so much for you all to handle and dear Aunt Betsy. Holding you all close in my heart and there are times when we almost wish we didn\'t \"know\" all that we do because it makes being in that place of hope so challenging. Yes, it is too much and it throws your family back into that place of being on \"alert\" when days of comfort and peace are what you are longing for. With you dear Sarah and your family as you uphold Aunt Betsy. With love, Joanie
Missinglisa
Missinglisa

Oh my dear Sarah. I feel so sad for you and your family. Reliving the horror. It makes it really hard to be positive about anything.
My thoughts and prayers are with you.
Love and hugs,
Marlene
deleted_user
deleted_user

Tears are slipping through the edges this morning. I fear for Aunt Betsy, I fear for you and I fear for those of us who know without wanting to know that when this cancer touches us - it\'s never very far away from our beings ever again. This may not be the TRUTH - but it\'s how I feel this morning reading your words and those of your cousin - I HATE this for all of us. I am so sorry and lost for any words of comfort - but you know you have my heart in all of this misery that we share. Love and all that goes with it - Suzzanne
KandL
KandL

Oh, Sarah, I am so sorry. This must be so scary for you. Big hugs, Linda
deleted_user
deleted_user

Sending you a gentle hug. I\'m sorry you have to go through another tragedy:( We are all here for you. Danette
PLA58
PLA58

This is scary life changing and it hard to wrap around the meaning of what might be or what is to come. Tell your cuz to ask lots of questions tell the dr\'s to speak in simple terms. This may help him understand better and allow him to keep you up to date. When he understands he can explain it all to you better. \"You hang in there baby \" Hugs Penny
deleted_user
deleted_user

I just don\'t know what to say except please rest assured our thoughts are with you and we will be here if you need us. Truly your friend, BarbaraWawa (Barb)