All About Me
I'm 49 years old and was just recently diagnosed with MCTD - predominantly polymyositis in February. I started having a variety of symptons in late August and kept visiting my family doctor who I think thought I was a hypochondriac. I had told him that I literally feel like I'm falling apart.
Saw Rheumatologist in February who pretty much diagnosed me right away after she got the bloodwork then put me on 50 mg prednisone and 100 mg Imuran on Feb. 14th (ck's were 8000 at the time). This past month has been a variety of tests - muscle biopsy (came out as negative) cardiologist visit (swelling seems to have gone done around the lining of my heart) hopefully don't have to worry about that for a while. I will be seeing a lung specialist to do some breathing tests in June. I did have some shortness of breath back in February, I'm hoping that has also disappeared. Just had an EMG done which confirmed the diagnosis of polymyosotis.
I am definately feeling a lot better than six weeks ago. More energy, inflamation has gone down and less muscle fatigue.
I think this year will be a year of transition. I think I will start to feel better once I find out more about my prognosis and what that means to my day to day living.
Strategies that I use to help me are reaching out to friends, keeping busy and going about my day to day life. I also try to think positively and focus on what is going well.
I also have a nine year old daughter that keeps me pretty busy and a pretty supportive husband.
Saw Rheumatologist in February who pretty much diagnosed me right away after she got the bloodwork then put me on 50 mg prednisone and 100 mg Imuran on Feb. 14th (ck's were 8000 at the time). This past month has been a variety of tests - muscle biopsy (came out as negative) cardiologist visit (swelling seems to have gone done around the lining of my heart) hopefully don't have to worry about that for a while. I will be seeing a lung specialist to do some breathing tests in June. I did have some shortness of breath back in February, I'm hoping that has also disappeared. Just had an EMG done which confirmed the diagnosis of polymyosotis.
I am definately feeling a lot better than six weeks ago. More energy, inflamation has gone down and less muscle fatigue.
I think this year will be a year of transition. I think I will start to feel better once I find out more about my prognosis and what that means to my day to day living.
Strategies that I use to help me are reaching out to friends, keeping busy and going about my day to day life. I also try to think positively and focus on what is going well.
I also have a nine year old daughter that keeps me pretty busy and a pretty supportive husband.
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