a wintery sunday
Well it is a cold wintery day, we had snow this week and everything is cleared off and out. I think this is the most snow we have had in years. I dont mind it at all, but then I dont have to clean it or drive much in it.
i havent journalled much lately, just out of shear laziness. That is the only thing i dont like about the ipad.....i cant write a journal from it.
And you can tell from the typos that it is making me lazy, because it corrects all my typos and adds punctuation, and capitalizes.....oh well, have to do this old school.
My appointment with the transplant doctor went well. he went over all the pros and cons and they did a couple of tests and it seems like I would be a good candidate. i am now waiting for a call for the full assessment, probably sometime in March....this will be over 4 days and they will do more tests and I will talk to the whole team and counselors and social workers and that sort of thing. I will most likely have to move to Toronto once I am on the list. they want me to do pulmoary rehab 3 times a week and blood work and all that fun stuff.
I will most likely move in with my daughter, she is not happy with her roommate anyway so this will give her a good excuse to ask her to leave or find us somewhere else. At least I am healthy enough that she will not have to nurse me....lol I would never ask her at her age to do that anyway. I think we would do well as roommates.....not living as mother and daughter, i would like it to be more equal and adult. She will just have to teach me how to use the streetcars and put a tracking device on me for when I get lost....lol Luckily she doesnt live too far from the hospital that I would need to go to, it is actually right by her school.
they did say it might only take a couple months or so once I am listed but it could also take a year, you never know. I am getting used to the oxygen. At home it is not a big deal, but going out is kind of a pain. It reminds me of when the kids were babies and all the stuff you had to do to get them ready and all the stuff you had to take with you.....i am so out of practise for that kind of thing.
I have had to be careful with the cooking to....we have a gas stove, so i have had to make some adjustments.....leazrning to pin the tubing behind me while i am cooking is a good one and I have started using my crockpot more.
I made bean soup and brownies today....it is nice to have some energy again, I even started cleaning out my linen closet. What a lot of crap....where does it come from? I ccan almost see my table top again, just a few more things to go through and sort for the yardsale in the spring....or goodwill if I get tired of looking at it.
I have had a few friends drop off some books for me and I have been reading like a demon....sometimes a book a day. I want to make them last though, so I am trying to pace myself. I have started to play solitaire on the ipad.....I think I have a serious addiction starting, hours can go by and I dont even realize it.... and godforbid i am eating something......wjere did that bag of cookies go? LOL memo to self, dont snack and play solitaire.....unless you want to gain weight!!!!
I havent told my Mother about the results of the assessment appointment, just dont want to deal with it....even by email. she doesnt pay attention anyway so why deal with the crap until I have to....and then she will get the rest of the family all riled up.
I think my Dad is brokenhearted with the whole thing, he seems so down. I guess I would be to if one of my kids were seriously ill. I think he realizes how serious it is and since we are both only children, I am all he has except for my kids. I just hope he takes care of himself. he hates when I ask him, just brushes me off like dont be silly of course Im fine!
Hubby is home now and the game is on.....i will be so happy when the superbowl is done and I dont have to even hear the games......thats probably why I have been reading so much. a friend has burned some movies for me, I hope I cn get a couple on my ipad for tuesday.....it is the first infusion of rituxan and it is supposed to be an all day thing, min 6 hours most likely 8. we have to be there for 8:00am, so that means we have to leave here at 6:30.....it will be a long day. I will have to call and see if they have oxygen available or if i have to pack enough for all day....should be an ineresting day.
I guess that catches up on most things.....one thing it is nice that things have calmed down over on the lupus board...things were getting a bit crazy there for a bit. Certainly kept things interesting....lol
i havent journalled much lately, just out of shear laziness. That is the only thing i dont like about the ipad.....i cant write a journal from it.
And you can tell from the typos that it is making me lazy, because it corrects all my typos and adds punctuation, and capitalizes.....oh well, have to do this old school.
My appointment with the transplant doctor went well. he went over all the pros and cons and they did a couple of tests and it seems like I would be a good candidate. i am now waiting for a call for the full assessment, probably sometime in March....this will be over 4 days and they will do more tests and I will talk to the whole team and counselors and social workers and that sort of thing. I will most likely have to move to Toronto once I am on the list. they want me to do pulmoary rehab 3 times a week and blood work and all that fun stuff.
I will most likely move in with my daughter, she is not happy with her roommate anyway so this will give her a good excuse to ask her to leave or find us somewhere else. At least I am healthy enough that she will not have to nurse me....lol I would never ask her at her age to do that anyway. I think we would do well as roommates.....not living as mother and daughter, i would like it to be more equal and adult. She will just have to teach me how to use the streetcars and put a tracking device on me for when I get lost....lol Luckily she doesnt live too far from the hospital that I would need to go to, it is actually right by her school.
they did say it might only take a couple months or so once I am listed but it could also take a year, you never know. I am getting used to the oxygen. At home it is not a big deal, but going out is kind of a pain. It reminds me of when the kids were babies and all the stuff you had to do to get them ready and all the stuff you had to take with you.....i am so out of practise for that kind of thing.
I have had to be careful with the cooking to....we have a gas stove, so i have had to make some adjustments.....leazrning to pin the tubing behind me while i am cooking is a good one and I have started using my crockpot more.
I made bean soup and brownies today....it is nice to have some energy again, I even started cleaning out my linen closet. What a lot of crap....where does it come from? I ccan almost see my table top again, just a few more things to go through and sort for the yardsale in the spring....or goodwill if I get tired of looking at it.
I have had a few friends drop off some books for me and I have been reading like a demon....sometimes a book a day. I want to make them last though, so I am trying to pace myself. I have started to play solitaire on the ipad.....I think I have a serious addiction starting, hours can go by and I dont even realize it.... and godforbid i am eating something......wjere did that bag of cookies go? LOL memo to self, dont snack and play solitaire.....unless you want to gain weight!!!!
I havent told my Mother about the results of the assessment appointment, just dont want to deal with it....even by email. she doesnt pay attention anyway so why deal with the crap until I have to....and then she will get the rest of the family all riled up.
I think my Dad is brokenhearted with the whole thing, he seems so down. I guess I would be to if one of my kids were seriously ill. I think he realizes how serious it is and since we are both only children, I am all he has except for my kids. I just hope he takes care of himself. he hates when I ask him, just brushes me off like dont be silly of course Im fine!
Hubby is home now and the game is on.....i will be so happy when the superbowl is done and I dont have to even hear the games......thats probably why I have been reading so much. a friend has burned some movies for me, I hope I cn get a couple on my ipad for tuesday.....it is the first infusion of rituxan and it is supposed to be an all day thing, min 6 hours most likely 8. we have to be there for 8:00am, so that means we have to leave here at 6:30.....it will be a long day. I will have to call and see if they have oxygen available or if i have to pack enough for all day....should be an ineresting day.
I guess that catches up on most things.....one thing it is nice that things have calmed down over on the lupus board...things were getting a bit crazy there for a bit. Certainly kept things interesting....lol
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