A little update...something I havnt done in awhile!
I havn't updated in awhile so I thought I would....
Considering it's 1.04am I am in pain and on the laptop in bed with my heatpack....I thought I'd have a little vent to my wondering lady friends out there who help me get through the tough times.
Jason recently bought himself a new toy (PS3) and is determined to spend the weekend having some 'him' time and playing it, so he is out in the loungeroom doing that =P I am glad he is doing something for himself...He does so much for me and for us he rarely does much for himself...I can't remember the last time he gave himself a treat so kudo's to him!
I have a really bad bought of pain + nausea, and I hope it settles soon. At 7am I have to get up because my wonderful best friend has dedicated Saturday to me and is taking me to the snow for my first EVER snow experience! I am so utterly excited!!
So whats news?
I had my post op appointment and unfortunately the news isnt great;
- Stage 4 Endometriosis
- Adenomyosis
- Pelvic nerve damage, he had to remove 1.5-2cm of my pelvic wall in my last operation due to the depth of the Endometriosis.
He sent for an ultrasound and I have developed cysts in my ovaries, the largest one currently measuring 5cms. He assures me these are simple cysts and will go away in time.
I also havnt stopped bleeding since the 9th of April a few days after surgery and the mirena was inserted. I really hope it stops soon, I need it to work as there's nothing else for the Adenomyosis.
He told me I will inevitably need a hysterectomy purely for the adenomyosis he knows it doesn't cure the Endometriosis. However I am too young and in Australia unless its for cancer Hysterectomy's are not easy to get unless you're nearing menopause. I'd also like the option of trying for children when we're ready.
I really wish this all had a cure...I'm so sick of feeling sick. I don't care what anybody says being sick is a full time job. Everytime I see Jasons dad and stepmum they always ask how things are and always tell me how sick I look...not in a bad way in a concerning way, they always tell me to call them if I need anything. It's nice to know they care, considering my parents are in another state it's nice to have that parental care close to home too.
I hate looking sick.
I hate pretending to smile like everything is ok too. I mean, I know I can't be a downer all the time but it is so unbelivably hard to smile when there's so much pain inside me physically and emotionally. Most days I just want to lay in bed and cry...but really, what would that change?
I know I'm depressed...but I am working through it all with my psychologist. It's just hard to be at this place at 20 years old...the end of the road...now its a waiting game.
I'm going to try and get some sleep now...I just thought I'd have a quick update.
Thanks everyone for always being there when I need you most =)
Without my family, friends and you guys I dunno what I'd do!
<3
Considering it's 1.04am I am in pain and on the laptop in bed with my heatpack....I thought I'd have a little vent to my wondering lady friends out there who help me get through the tough times.
Jason recently bought himself a new toy (PS3) and is determined to spend the weekend having some 'him' time and playing it, so he is out in the loungeroom doing that =P I am glad he is doing something for himself...He does so much for me and for us he rarely does much for himself...I can't remember the last time he gave himself a treat so kudo's to him!
I have a really bad bought of pain + nausea, and I hope it settles soon. At 7am I have to get up because my wonderful best friend has dedicated Saturday to me and is taking me to the snow for my first EVER snow experience! I am so utterly excited!!
So whats news?
I had my post op appointment and unfortunately the news isnt great;
- Stage 4 Endometriosis
- Adenomyosis
- Pelvic nerve damage, he had to remove 1.5-2cm of my pelvic wall in my last operation due to the depth of the Endometriosis.
He sent for an ultrasound and I have developed cysts in my ovaries, the largest one currently measuring 5cms. He assures me these are simple cysts and will go away in time.
I also havnt stopped bleeding since the 9th of April a few days after surgery and the mirena was inserted. I really hope it stops soon, I need it to work as there's nothing else for the Adenomyosis.
He told me I will inevitably need a hysterectomy purely for the adenomyosis he knows it doesn't cure the Endometriosis. However I am too young and in Australia unless its for cancer Hysterectomy's are not easy to get unless you're nearing menopause. I'd also like the option of trying for children when we're ready.
I really wish this all had a cure...I'm so sick of feeling sick. I don't care what anybody says being sick is a full time job. Everytime I see Jasons dad and stepmum they always ask how things are and always tell me how sick I look...not in a bad way in a concerning way, they always tell me to call them if I need anything. It's nice to know they care, considering my parents are in another state it's nice to have that parental care close to home too.
I hate looking sick.
I hate pretending to smile like everything is ok too. I mean, I know I can't be a downer all the time but it is so unbelivably hard to smile when there's so much pain inside me physically and emotionally. Most days I just want to lay in bed and cry...but really, what would that change?
I know I'm depressed...but I am working through it all with my psychologist. It's just hard to be at this place at 20 years old...the end of the road...now its a waiting game.
I'm going to try and get some sleep now...I just thought I'd have a quick update.
Thanks everyone for always being there when I need you most =)
Without my family, friends and you guys I dunno what I'd do!
<3
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