A little update
I havn't done an updated journal in awhile,
We all know how Surgery #3 went horribly. I can't believe I'm 20 years old (21 in August) and since I was 9 years old I have been dealing with this crap. I am scared on what is next because in the line of hormonal therapy there is nothing. I am at this point willing to be a guinea pig. I am also highly considering trying some natural suppliment ideas which have worked for other women. I keep wondering, how long? How much longer untill I feel 'normal', how much longer untill something works? I am slowly mentally coming to terms with the fact it might never happen.
I went to the doctor today, I have a kidney infection, I spoke to her and she isnt my usual doctor but she is AMAZING, I discussed with her about Femara and it is not an option due to restrictions etc here in Aus. If I were to have it it could cost me 1000's and I don't have that sort of money. She said I will have a hard time because I am a bizare case (wish she could meet some of the ladies on here! she'd realise it's not so bizare), she said I am in for a continual battle since nothing works for me and most women with endo find *something* to help ease the pain. She listened, she gave a womans soft heart and she listened, she didn't look at me like I am a drug seeker, she didn't look at me like I am crazy for doing my own research, she commended me for getting involved, a breath of fresh air, Maybe I'll change or keep my male and female doctors, top 2 incase I can't get into one.
My period came earlier then expected, but who knows the real due date of it anyway. I ovulated just days before which worries me. But thats something else to deal with when the time comes, atleast I am ovulating. However my FSH levels don't register on the OPK's so they are no use to me!
Some good news has happened, I did get into the university I wanted, fingers crossed my health doesn't interfer!
Small steps are important, small goals, small achievements. There's a bigger picture out there this all fits into, and while I want to cry myself to sleep and cry all day long curled up in bed in a ball, it's not productive rather it's detrimental.
I just hope I see the bigger picture soon.
I just hope I see a cure in my lifetime.
Small steps.
x
We all know how Surgery #3 went horribly. I can't believe I'm 20 years old (21 in August) and since I was 9 years old I have been dealing with this crap. I am scared on what is next because in the line of hormonal therapy there is nothing. I am at this point willing to be a guinea pig. I am also highly considering trying some natural suppliment ideas which have worked for other women. I keep wondering, how long? How much longer untill I feel 'normal', how much longer untill something works? I am slowly mentally coming to terms with the fact it might never happen.
I went to the doctor today, I have a kidney infection, I spoke to her and she isnt my usual doctor but she is AMAZING, I discussed with her about Femara and it is not an option due to restrictions etc here in Aus. If I were to have it it could cost me 1000's and I don't have that sort of money. She said I will have a hard time because I am a bizare case (wish she could meet some of the ladies on here! she'd realise it's not so bizare), she said I am in for a continual battle since nothing works for me and most women with endo find *something* to help ease the pain. She listened, she gave a womans soft heart and she listened, she didn't look at me like I am a drug seeker, she didn't look at me like I am crazy for doing my own research, she commended me for getting involved, a breath of fresh air, Maybe I'll change or keep my male and female doctors, top 2 incase I can't get into one.
My period came earlier then expected, but who knows the real due date of it anyway. I ovulated just days before which worries me. But thats something else to deal with when the time comes, atleast I am ovulating. However my FSH levels don't register on the OPK's so they are no use to me!
Some good news has happened, I did get into the university I wanted, fingers crossed my health doesn't interfer!
Small steps are important, small goals, small achievements. There's a bigger picture out there this all fits into, and while I want to cry myself to sleep and cry all day long curled up in bed in a ball, it's not productive rather it's detrimental.
I just hope I see the bigger picture soon.
I just hope I see a cure in my lifetime.
Small steps.
x
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