Gosh, I didn't realize that it had been so long since i journaled here.  Lets see, I did a 5 mile run on Monday and sort of a 3 mile run today.  I say sort of, because I had asthma "issues' about half way.  I had such a hard time breathing, and I forgot to take my inhaler with me.  So I had to keep stopping to get my breath.  I hate having asthma.  I have been taking the "homeopathic" stuff for NF, doesn't seem to be doing much.  I still have pain from the tumor in my side.  The patches don't seem to be doing much anymore.  I think the first night I used them was just random chance that I had no pain.  I haven't heard from my doc about the Neurosurgeon he was supposed to refer me to to have it removed.  I wish I could be a normal 48 year old woman who is only worried about wrinkles and celulite.  I hate being a freak.   And to make things worse, my daughter tested for her drivier's permit, and when she did the eye test, she could'nt read any of the letters with her right eye.  She also has NF, so now I have to get her in to a doc to check her for an optic glioma.  I am so sick of NF.  And I am even sicker of doctors who don't give a flying crap about those of us who have it.

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deleted_user
deleted_user

I think it\'s very hard for some docs to emphathize with patients when they haven\'t experienced a similar issue.