Finally stopped being sick been such a long time .Managed Taichi but limping bad still . I had a fantastic weekend went and got my wedding dress and bridesmaid dresses with my sister and daughter I feel so happy though I needed to rest up alot as walking around left me exhausted ,slept alot yesterday .
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I just wrote a message to Marianne and realised it diarised the start of my Mct and decided to copy it here to remind me Hi Marianne ,
It was around May I think sorry I am writing this and very tired today more then usual .I have had raynauds for some years and often felt tired and had mouth ulcers always thirsty then on a couple of ocassions I had really bad headaches and sickness with dizziness and my leg would just seem to give way and I would fall .I never put these episodes together until one day I was just coming down the stairs and my hip gave way but this time I could not put any weight on my leg to walk .I managed to limp some but the pain was excrutiating that I went to the hospital .It felt like I had fractured my leg .I remeber thinkingbut I haven\'t even fallen . I went to the ER they did scans and left with crutches .The pain did not subside and I could not get about .The doctor did blood tests and dound the rnp thing positive ana and I would need to look up the other antibody things they mentioned high sed rate .During this time I had looked up various things on the internet and thought its Sjogrens .You see my daughter has JRA and my sister has RA .I kind of thought it had to be Ra but no the symptoms of Sjogrens matched perfectly this was confirmed to be the case .Since then I have had numerous tests and still ongoing .I was often breathless ,I had been having acid reflux which caused the sickness .In fact I had not bothered the doctor with lots of my symptoms because I thought they would think I was a hypochondriac. My mind was very fuzzy at times I could not remember simple things especially directions lol .I was feeling depressed and anxious because I was totally exhausted to extremes and all I was told was take b6 and rest .I had mouth ulcers constantly .My mind felt very strange like hyper intensity to my senses functions . After various tests the doctor diagnosed sjogrens ,mctd, bronchietasis ,reduced lung function,osteoarthritis in my back and crest. I have appointments to see a gastroenterologist for the sickness and reflux in the coming weeks .Sorry this mail is so long I started to realise it was like a diary of what happened which I can look back on .Crikey bet your sorry you asked now lol .
As for the wedding I am over joyed I met the man of my dreams 3 years ago and he has been with me through thick and thin and my big day will be July /Aug date to be agreed next week with the vicar ....Big Hugs Dawn . Hey how did you get diagnosed was it a long process foryou too