It has been  the best part of 7 -8 months now and I am still wondering what will happen ,trying to keep upbeat is difficult when you feel so scared .Hiding that your scared is the hardest ,what would my partner think and my daughter ,they would be scared even more then me . Noone is giving me the answers fully .Yes you have sjogrens ok and what are the other terms they mention crest yep got that sclerodferma ,have read up on that one and it sure scares me . My lungs are the ones most affected ,reduced pulmonary function and bronchotais .Crikey some of these things I can hardly spell though I feel I have swallowed a dictionary on medical terms . I have a hiatus hernia oesophagitis and the acid reflux too .My ankle hurts badly and my back .I take the plaquenil and omoprezale ,at least I don't feel so tired as at first but I'm still dragging myself to work . I started a new job just as I got ill and kept my syptoms well under wraps .My probation period is over and thereis no way I can hide the symptoms now . I feel pretty annoyed with myself that I'm not really holding things together .I go from one appointment to the next .Perhaps tomorrow will be a better day . I am wondering how others cope ,will it get better is there any better drugs to deal with this ?