I was dx with CREST syndrome, about 10 years ago, and have experienced few problems with the exception of Barretts esophogus. It makes me anxious, as I have a history of cancer, and it can be related to cancer of the throat. I am also going to have an echocardiogram. I have read that pulmonary hypertension is frequent with this dx. I am seeking more information from anyone who has CREST, especially about the incidence of pulmonary hypertension/fibrosis.
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