I had some news today that really made me cry a river to my RN at the clinic. Seems my doctor is not comfortable prescribing the LDN I was planning to try, and my only option is to join a 90=day trial in which I may receive a placebo. That would be OK, except that if I did get the real thing and liked it, I still could not get it after the 90 day trial... Rock and a hard place.I admit, I wore my heart on my sleeve becoming very upset with the RN (who also has MS). She completely understood my frustration, but she knew her hands were tied.After I thought about it all afternoon, I realized that I have to accept my neuro's judgement. After all, he is much more educated that I. Also, he respects my decision not to be a needile-therapy MS patient--NO MORE NEEDILES! (and yes, that spelling is correct in my household like some of my other references--dogz, sistour, and the like) He respects my decisions; it is only fair that I respect his.That being said, I realize I have the option to switch neuro, but I've done that many times, and I like my current neuro which is very important to me. Also, I would have never known about LDN without going to the clinic with my friend. I'm going to wait it out because it is possible that my dr. will change his mind about LDN. Besides, I really must attribute my recent symptoms to the change in weather, clocks, and just plain ole doing too much! I really have been kicking my butt, and must settle in for a long winter's nap...I'm interested to see what you all think but am resigned to trust my neuro's decision, at least for today. I also have other things that would help me along if I'd just remember to take them! In fact, I just finished a BAZI today which I've been nursing for about 1 month. I really need to take that more often. And of course, loosing a few pounds would be a good thing as well. I leave to rest for the night...
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Hi Cj ... gosh I could feel your emotions all the way to New England. I\'m sorry your neuro put a damper on taking LDN. But I have to agree with him. Like you said, he knows best. I\'m glad you\'re comfortable with your decision, despite the tears.
I too am having symptom flares that are driving me nuts. Guess it might be the weather, cold here, the change in time and like you, doing way too much. We both need to learn our limits and stick to them.
You have a calm, relaxing night and we\'ll chat again soon.
love ya, Marti
try to find other doctors willing, you can email Crystal and find a doc in your area.
I do need to ask, is the 90 trial a LDN trial?
Cj...just flood your neuro with info. Get as much as you can. Bug him with info. Mail it, bring it, break him down....That\'s what I would do. It\'s worth a try. Maybe he\'s just uninformed.
I too am waiting for my doctor to call me back on wether she will give me a script for LDN. I would like to try it but will not change doctors if she would not do it. She just got a grant from MS Society to do research on anti-oxidents. I respect her opinion she is very up to date on research in MS field. Will let you know if I get it she should call today!
Im so sorry sweetie, I feel your pain. I pray that somewhere or somehow you will find some relief.
I am so sorry for your disappointment!! Maybe with the new trials and studies that are coming out about LDN, he will change his mind in the near future and let you try it. -Many hugs! :-)
I also feel your pain what the medical commmunity doesn\'t understand if there not a ms patient thereselfs is the hell we live with every day. I\'m also going to ask my nuro about the ldn. Something has to give cause I\'m sick of liveing this way. Will be 15 yrs day b4 xmas..I\'m ready for a change