SATURDAY, April 12
We need a mad face for this site, yes? I know that usually I am very upbeat but today may I freely rant rave stomp my feet and act like a pissed 2 yr old who doesn't get her way? ROFLOL Please, I promise I won't make a habit of it and after I blow, I promise to play "nice" with the "expert drs." ROFLOL ROFLOL
OK Gang....went to Dr but had to take her fill in who I think I scared crapless! ROFLOL
Anyway, BLAH DEE BLAH DEE BLAH over condition. The meds are keeping my back from locking but the effect is like I've taken cold medicine and so I'm sort of blahhhhhhhhh. Still my back muscles are tight but not locked.She wants to start me on LEXPRO in addition to regular meds. GOOD GRIEF! It supposedly will help the muscles because it will reduce my "anxiety" as it is an anti-depressant.
ALSO wants me to see the "counselor" BLAH DEE BLAH DEE BLAH. Honey, love that gal, known her for years,we're friends, but COUNSELING WON'T HELP. Been there, done it, got the freakin' t-shirt.
WHY can't the "experts" get it when we tell them I'm hurting and because I hurt 've "lost" my regular life and that causes me to be FRUSTRATED not depressed and not anxiety ridden. I'm sooooooo tired of hearing "are you depressed" that I want to stick my foot so far up their butts they taste shoelaces! LOL
I mean, don't they get it???? Let me knock you on your butt, beat you up so you're sore all over, you keep gaining weight and if you take enough of the pain meds you sit and sleep like a drool monkey (I'm sorry but that image of me sitting on the couch with remote in hand drooling is just too funny! ROFLOL).
NOW BACK TO MY RANTING.... So that ain't no life. Yeah, ok, now, Dr has decided I've "anxiety" because I kept saying I wasn't depressed. ARGH.
Peeps, I've been clinically depressed after my grams died and was suggested "if all else doesn't work you can have electro-shock" at which point I stared at the Dr. and said "If I wasn't depressed before I am now. So like you wanna hook me up to a 220 and light me up?" ROFLOL ROFLOL So, I do know this is not depression, really, but extreme frustration.
So, my dear loves, here is all you need to do for your "miracle cure" per my DR.
(1)TAKE YOUR REGULAR MEDS ON TIME AS PRESCRIBED (2) WALK REGULARLY TO REDUCE STRESS (3) TAKE TIME FOR YOU.
Got that. You now have the miracle cure and feel free to post it on any blog or website as I have no desire for copy right infringement. ROFLOL ROFLOL ROFLOL
Thanks for letting me rant. And I promise to be my "normal" regular but irregular self.
TOOODLES and I send each of you my love.
We need a mad face for this site, yes? I know that usually I am very upbeat but today may I freely rant rave stomp my feet and act like a pissed 2 yr old who doesn't get her way? ROFLOL Please, I promise I won't make a habit of it and after I blow, I promise to play "nice" with the "expert drs." ROFLOL ROFLOL
OK Gang....went to Dr but had to take her fill in who I think I scared crapless! ROFLOL
Anyway, BLAH DEE BLAH DEE BLAH over condition. The meds are keeping my back from locking but the effect is like I've taken cold medicine and so I'm sort of blahhhhhhhhh. Still my back muscles are tight but not locked.She wants to start me on LEXPRO in addition to regular meds. GOOD GRIEF! It supposedly will help the muscles because it will reduce my "anxiety" as it is an anti-depressant.
ALSO wants me to see the "counselor" BLAH DEE BLAH DEE BLAH. Honey, love that gal, known her for years,we're friends, but COUNSELING WON'T HELP. Been there, done it, got the freakin' t-shirt.
WHY can't the "experts" get it when we tell them I'm hurting and because I hurt 've "lost" my regular life and that causes me to be FRUSTRATED not depressed and not anxiety ridden. I'm sooooooo tired of hearing "are you depressed" that I want to stick my foot so far up their butts they taste shoelaces! LOL
I mean, don't they get it???? Let me knock you on your butt, beat you up so you're sore all over, you keep gaining weight and if you take enough of the pain meds you sit and sleep like a drool monkey (I'm sorry but that image of me sitting on the couch with remote in hand drooling is just too funny! ROFLOL).
NOW BACK TO MY RANTING.... So that ain't no life. Yeah, ok, now, Dr has decided I've "anxiety" because I kept saying I wasn't depressed. ARGH.
Peeps, I've been clinically depressed after my grams died and was suggested "if all else doesn't work you can have electro-shock" at which point I stared at the Dr. and said "If I wasn't depressed before I am now. So like you wanna hook me up to a 220 and light me up?" ROFLOL ROFLOL So, I do know this is not depression, really, but extreme frustration.
So, my dear loves, here is all you need to do for your "miracle cure" per my DR.
(1)TAKE YOUR REGULAR MEDS ON TIME AS PRESCRIBED (2) WALK REGULARLY TO REDUCE STRESS (3) TAKE TIME FOR YOU.
Got that. You now have the miracle cure and feel free to post it on any blog or website as I have no desire for copy right infringement. ROFLOL ROFLOL ROFLOL
Thanks for letting me rant. And I promise to be my "normal" regular but irregular self.
TOOODLES and I send each of you my love.
Replies
well i know the frustration because i\'ve always been the positive person so when i got sick and they said are you depressed i looked at them like they were nuts but i do have very high anxiety, i worry about things that will probably never happen and i get panic attacks out of nowhere, 1st time i got one i thought i was havin a heart attack. I am on lexapro and it does help me i havent had a panic attack in 6 months i am still neurotic but not as bad because like you i want to run and live and my body wont let me so i watch people around me have a life and it stinks! I love when they tell you to walk, exercise, i HURT all over! love to you dear, adelle
you know, it\'s good to let it all out every once in a while. haven\'t you heard of the screaming therapy? I saw it on tv (long ago) that just screaming lets you get it all out of your system. you are always so sweet and kind---you deserve to rant and rave---you go girl!!!!babe
how\'s that backrub machine doing now, does it still reduce the pain at all? You keep ranting & I\'ll do the raving foryou!luvya gal, and have a great Mother\'s Day!/c
OK, Adelle & Babe --- I am eating Kraft caramels and drinking hot coffee and both are probably bad but I did take my meds so that makes me \"good\" ----ROFLOL I suppose that even out 1 to 1 you know?
Yeah, exercise, is running after 4 kids, errands, laundry, walking thru the house and picking up messes, etc...I sure ain\'t using a scooter! ROFLOL I WALK, DUHHHHHH! I am going to try to go to the walk track as soon as the weather straightens up also contemplating (ooooo big word!) another stab at yoga.
The jerking can be due to FM or MS. It\'s listed under psuedo epilipsy as it isn\'t a true seizures but is \"thought to be\" stress related. Well, when a cold wind hits my body just right, the jerking can start but stress will also do it.
Love & hugs to all.....and Babe, I\'m glad you think I am \"always\" sweet & kind. ROFLOL You\'ve not seen me backed into a corner and a shredded nerve being stomped on with cleats! ROFLOL
On about the 4th Rheumatologist, who told me I was depressed, I said OK, Give me a psychological test. He said \"OK\", Had me fill out a 12 page form, resulted it while I waited and said \"I WAS RIGHT!\" I wasn\'t depressed! Then he said, and I quote \"YOU HAVE 5 KIDS!\"- DUH! What has that got to do with anything??? My mom had 7 and at 60 could work circles around me! Well, he said \"I have a whole waiting room of hurting people!\" (is that my fault?). Then he said \"Well , I don\'t treat Fibromyalgia, take some NSAIDS and you\'ll be fine.\" I said \"Your room full of people are old, I\'m 35! What about your friend the research immunologist who said I have Lupus and sent me to you?\" Reply \"He isn\'t a rheumatologist...he was mistaken.\" What about my strange antibodies they did research on ? What about Simone being born with neonatal thrombocytopenia in NICU for 2 weeks? All symptoms of Lupus???
Well, this was the only time I ever bothered but I sent him a scathing letter and told him how totally inept, and not listening, or caring, he was. Also told him not to charge me for the visit , because it was a complete waste of my time...that I was assured he was good , by his Dr friend at MSU (who by the way was an amazing man! )HE taught me lots when no rheumatologist was even acknowledging Fibromyalgia as something to be treated, let alone that I might have unusual case of Lupus...
I still find myself outside the norm when it comes to autoimmune disease, but after 5 surgeries they finally take me seriously...But, despite that, I have NEVER had a Rheumatologist help me..Just tried 2 more over a year ago after my last couple bout\'s of surgery...I was sent by one to U of M in Ann Arbor...his statement \"We see a couple of you a week , don\'t know what to do with you, but do not recommend prednisone.\" Great, that\'s the only med along with plaquenil that have given me my life back! Doesn\'t that reaction to prednisone in itself say something?
Luckily, my Family physician is an internist who has found herself specializing in Fibromyalgia, because no one would treat them. She was a Med tech (like me) before she became a doctor, and has a good grasp on autoimmune disease..she kept sending me to all these rheumatologists , because she didn\'t want to overstep her boundaries....but in the end she is the only one, who has helped me, even when I needed cardiologist, surgeon, gastroenterologist she was there guiding me.
She agreed that one rheumatologist (#4) was an idiot! She told me I wasn\'t depressed, after all she had known me since my kids were 3 yrs old and she was our G.P.
So jump up and down stomp your foot! Tell them to read RA Today or LUPUS NOW, get informed, heck send them the treatment list from this website to give them a few good ideas! But don\'t patronize ME, or call me non compliant, when what you are doing isn\'t working.... just do more of the same??? That\'s like doing the same yelling at your kids , that does nothing! You have to change the game plan...like a different discipline for the naughty child. (bad metaphor??)
Anyhow let them know you are not pleased , let the hospital they work out of, know you aren\'t pleased..(that does usually get a response!)
Pain control is every patient\'s right! (repeat that to them till they get it..or move on to someone who does.)
On the exercise thing the only exercise that works without hurting yourself more, is very short bouts of walking , like 3 minutes on treadmill..gradually working up time slowly, do it 2 x a day (flat , No incline or swimming or aquasize since your joints don\'t have to bear your weight in the water.
I gave up getting mad about 10 years ago, I just don\'t have the energy to waste anymore..if something doesn\'t work for me, (like a gastro. who told me to go home my colon was fine...so what if I never went for 2 weeks!) I found a good one out of Cleveland Clinic, who figured it out, and got me going and checks to make sure no more blockages occur, and he works out my home hospital. So now if someone is a waste of my time I just tell my primary, have them send her a report to add to my file and move on. She get\'s it, and she keeps me on prednisone, and pain free (fairly) and doesn\'t let me take opiates which slow down my already sluggish bowel and colon.
Boy I should have sent this in a message...everyone is going YA-DA YA-DA..... Yawn.....Sigh...
From the hopping mad leprechaun!
Nanette ( and I\'m only IBM!- That\'s Irish by marriage!)
PS: I did develope depression about 10 years ago and have been treated for it, it has helped me immensely, but the chemical depression is from the disease itself, they have found..so if that is the case I hope you find an antidepressant that is mild, and works for you. Mine does increase my pain threshold. I tried to get off 3 times but my family and Bible study even begged me to go back on. So now I need it, but I didn\'t back then...they just weren\'t listening!
Phew- that\'s all folks!
Nan
Dear KEEPINGON....Yeah, the LEXAPRO is helping the muscles for whatever reason. It\'s \"tecnically\" used for anxiety & depression but right now, I don\'t care if it \"technically\" used to cure foot fungus if it will help me be more mobile. I really don\'t think I\'m \"depressed\" per se I mean as I said I had clinical depression and this is totally different. I do want to sit & cry sometimes and am moody but that is out of FRUSTRATION....you know like when you have more bills than money and you want to sit & cry? That\'s the kind I\'m talking about.
Yeah, I had one Work Comp doc actually prescribe me BLADDER CONTROL MEDICINE for my neck. ROFLOL Maybe he thought that would keep me from being pissed off? ROFLOL ROFLOL ANYWAY, can you believe Work Comp approved it but I never even got the script filled! SHEEZ! How does the neck effect my freakin\' bladder? ROFLOL ROFLOL Soooooo glad I saw an \"expert\". ROFLOL
Take care luv, my LEXPRO does seem to be helping the muscles not be so tight in addition to the other meds I am on.
Hugs....