Hi,    I have nf1 and so does my son. it seems like it is getting stronger in my family. My mother has it and so did her mother. It is hard to say if it really is getting stonger because my grandmother had so my lumps all over her body.     My mom has some to not as many as her mother did. I have them more on my back or belly.  My son seems to have a few problems from it. He has a slight curve in his back, enlarge optic nerve in one of his eyes. His head is bigger than normal along with his arms and legs.    My husband doesn't seem to understand how I feel. Sometimes I think he thinks I just wand pity and I don't. I tried to tell him sometimes I just to talk about it.   Cathy