Wow, Friday already. Thursday I cleaned part of the carpet in the spare bedroom and washed several loads of laundry. Also made it to noon mass. By the end of the evening I was tired, but was amazed at how much I had acomplished. I wonder if the LDN has anything to do with the new energy?Today...finished cleaning bedroom carpet and did the hallway and spot cleaned the dining room. Wow, were they ever dirty! The water was black and I did those same caprets not too long ago? Today I slept in until 10:20 and around 2:30 p.m. really felt the fatigue. I kept going, though, and took my second amantidine. It doesn't really give me so much energy as it enables me to stay awake and keep working despite the fatigue. I was able to continue working with the exception of the break for supper) until 10!0 p.m. Now I am very tired.I think the water intake bucket on my machine is broken and I hope Mike can fix it. Until he does, I guess I am done cleaning carpets for awhile! I do want to learn how to use the upholstery tool, though as I need to do my chairs and couch. Jack is still in New Orleans on his mission trip. It sounds like he is working hard and enjoying himself. Wonderful! It will be nice to have him back home, however. I have had 'peace' this past week, though, since he has not been home to play his music so loudly that it shakes the floor and walls. Physically, not a lot, but a couple of small concerns. I note these only because I am trying to keep a symptom log. I already don't remember yesterday and symptoms so I'll just forget that one. Speaking of forgetting, my memory is not great. It's better some days than others. Also, after finishing the carpet tonight, I was off balance and lunged to the right. Fortunatley, I was by the counter, so I grabbed that both times and didn't fall. It's so weird when that loss of footing or whatever it is, happens. Also, for what it is worth, I spilled a glass of pop at the restaurant tonight. I just knocked it over. Really clutzy. Interestingly enough, I knocked over a glass of pop last night at a workshop I was attending. Coincidence?I have mentioned to Mike that I think symptoms are getting worse. Whenever I say something like this, he always just says, "Oh?" That's it. I didn't think I was talking about MS that much, but maybe I have been? Or does he feel that since he gives me my shot once a week, that's enough involvement? Should I even be asking these questions? Sometimes I tend to overanalyze and borrow trouble and I certainly don't need to be doing that! Still, I can't help but wonder...and feel a little alone.I wrote an email to ALL seven of my brothers and sisters about my MS. It wasn't 'feel sorry for me' or "My life is rotten" or anything like that. It was just straightforward and matter of fact. I was writing about falling in the water at the lake and concerned that it bothered my mother. I asked those who were there when I kept falling down to reply regarding whether or not they thought Mom was concerned. Three sibs were there; not ONE responded. So what does that say? Apparently no one in my family wants to go near the topic. Interesting. Why? My guess is that they are uncomfortable with the topic and just don't know what to say. I can kind of understand that. When first diagnosed, two sisters especially were so, so supportive. One was researching it and one would call and email. Now, nada. We're going to Mom's this weekend as Mike is competing in the Prairie Rose State games on Sunday. We'll go to Fargo tomorrow and while Mike and my brother Kevin are disc golfing (gotta practice before competition--get the feel of the course), I'll visit Dad and Jewel. I haven't seen Dad for a long time. Every time I see him I think it will be the last time. He has been so close to death for many years. As he says, "On paper, I'm not even alive." He has so many conditions and so many of them are quite serious. I'm certainly glad he's still here though! Last time I saw him we shared medical stories--especially the tests we'd both had last year; mine for MS and his for his heart and clogged arteries. Compared to what Dad is suffering from, I am very, very lucky. It was fairly warm here today. Got a couple of loads of clothes washed and hung on the line. Then a big thunderstorm with really storng winds came up and dropped a lot of water and a littlie hail in just a matter of minutes. After about an hour, it was gone, although it stayed somewhat overcast and the weather didn't cool off, which surprised me.I attended a memoir writing workshop last night with ND author Larry Woiwoode (sp.). He was so interesting to listen to and if I ever decide to write a memoir, I'll use his suggestions. I'm glad that I am keeping this journal (important to have some records like diary/journal) as I made at some point decide to write about this first year of MS (one year the end of October or beg. of November). I don't remember the exact date which is just fine, because who would want to celebrate MS anniversaries each year? I certainly don't.Mike downloaded The Breakdown Lane for me so I can listen to that on my IPod. I'm glad that we have access to Mary's book subscription for downloading purposes. I'm really glad that the book company allows two people to access the same site. I really shoudl pay part of the monthly fee since I have used it a few times. Enough said for one evening. 

Replies

deleted_user
deleted_user

Hey just wanted to first caution on overdoing it. Be careful with all the cleaning, it will just make your fatigue worse. I also wanted to empathize. I understand the family issue. My family and friends have acted the exact same way. Upon first diagnosis, they were very supportive and caring. Now it is as if I am not to talk about as if things must be better now. But hey thats why we have each other on Daily Strength. Each of us completely understands the other. Have a great rest of the weekend and God Bless. (Try and get some rest)
deleted_user
deleted_user

You sound like you have so much more energy than during the school year! Husbands...hmmm....mine never wants to \"talk\" about it, but he is a dear with picking up a load of laundry here or there, stopping by the grocery store. But we\'ve skated around the MS issue all together here. My 1 year is also in Oct/Nov. And I think I am going to celebrate the fact that I know, I understand and I\'m dealing with it!
deleted_user
deleted_user

I like the idea of celebrating your knowledge of MS and the fact that you are dealing with it. Thanks to both of you for your comments. I never thought my family would evade this issue! I wonder what I would do if the shoe were on the other foot? I hope that I would continue to be supportive, but I guess I\'ll never know.
deleted_user
deleted_user

Just wanted to know if you can take the avonex with the LDN? Thank\'s Cindy