Thursday, August 28, 2008 – 6:10 P.M. This week started out badly, and never got much better. I have been faced with more problems than usual. I am getting through them one at a time. There are solutions to most problems, if I just take time to analyze each situation, and then look at the options available to me. It also helps when I remind myself to keep moving forward.   Because of my increasing dissatisfaction with my home healthcare agency, I have been considering changing to another one. Monday afternoon, a CNA with the agency I had before this one, came to see me. He said he was trying to get that agency to let me return to it.   On that same day, my physical therapist gave me the name of another agency, along with the name of its owner, and urged me to call it and make inquiries as to what benefits I might receive by signing up with it.   I felt that I was under a lot of pressure to make a change even though I had not yet decided that was what I really wanted to do to begin with. After giving this considerable thought, I have decided not to do anything until talking it over with my doctor and his social worker when I see them next Friday.   My physical therapist informed me that she was going to recommend to my doctor that I continue with pool therapy, but will need to get it at a community pool, such as at one run by Easter Seals. That will require me to have someone lined up who can give me skilled care.   When I realized everything that needed to be done, it threw me into a panic, because I thought I would have to be the one to make all of the arrangements, and I did not know how to do that. I now feel that my physical therapist will need to do some of the work, while my doctor and his social worker can do the rest.   My sister and I met with my social worker (Dale), at the mental health clinic, on Wednesday. It was another “family” conference, but it did not include our brother. I think it was a helpful and worthwhile meeting for both of us. I will be going there again in about two weeks (without my sister), and then our brother will be asked to join us in October.   Dale asked each of us if we thought our brother loved us. My sister said yes, and I said no. That shocked my sister, who tried insisting that he loved me, but I disagreed. I am not going to deny how I feel about this. When my brother joins us, Dale is going to try and find out if he wants to take part in the family. I was told that I really needed to prepare myself in case my brother says no. Since I already believe that is how my brother feels, I cannot see any way he could hurt me more than he has already.      While getting me out of bed Tuesday morning, my newest CNA did something he was not supposed to do, which caused me to have a bladder problem most of the day. Since I was having a lot of pain by mid-afternoon, I notified the home health agency of my situation. A nurse was sent out to assist me.   She was able to identify the problem, and to alleviate my pain, but the damage was already done, and I now have another urinary tract infection. When the CNA did not come here yesterday, I (incorrectly) thought he had been replaced. If he messes up again, that will be the last time I let him help me.      

Replies

deleted_user
deleted_user

Good God ! No wonder you were overwhelmed !
What a bunch of stuff to deal with, and all in a very short period of time.
You are right, you do have great ability to make decisions after you work through each problem.
It just is awful to get a dump truck load of changes that need to be addressed, come all at one.
I am glad the meeting with your sister was a good one.
I know what you mean about your brother. I have one of those two.
However, there is no way in hell he would ever, ever consider coming to one of my counseling sessions. If your brother actually does participate in the session, he must have some level of affection for you.
Love...?? The jury is out on that one.
Delegate, delegate...and delegate some more.
All of your health professionals need to do some of this work with you.
You are most definitely right to wait until after you speak with your doctor and the social worker before making a decision.
Your life is complicated right now.
Still, I think things are looking up.
Don\'t let that CNA dude near you.
What an inexcusable mistake.
Bad news about the urinary tract infection.
Take care, there guy !
Next week is coming very soon.
Everything will work out.
deleted_user
deleted_user

Easter Seals should be able to help you with EVERYTHING re: moving your swimming. That\'s what they do. And you know I know that from experience.

\"Thank you for the suggestion/information, I\'ll think about it and get back to you.\"

That\'s what you say to someone who is pressuring you for an answer. These people may unknowingly sense that you\'re a malleable type - you were for most of your life, and that\'s not your fault.

But that was THEN.

This is NOW.

You survived wheeling yourself from a closed store to meet your sister.

re: Your brother, if he\'s got any substance abuse/dependency issues, he can\'t love anyone. He\'s in his own head too much. He can\'t see past his own misery that he\'s trying to numb. So you might have to step back and look at him objectively, and not as your brother. But don\'t waste a lot of energy there, you can still move forward. Your brother will catch up or he won\'t.

Hugs and Mojo
Weebs
deleted_user
deleted_user

Jim, I know you are overwhelmed and I know the abandonment issues are likely seeping in. They sure do for me.
I see progress here (minus the urinary tract infection). BIG TIME. You are tackling the anxiety, you are persevering, you are able to put things in perspective and take the time you need before taking action. Your courage and strength is shining through.
deleted_user
deleted_user

Each one of you has much more faith and confidence in me than I have in myself. I keep looking around to see if you have me confused with someone else. Thank you for all of the positive encouragement and support. It really means a lot to me.