4 new and back going out. T.T
Back went out last week..was hobling along just tryin to suck it up and deal with it and the monster that graced me with it's arrival in my left armpit without eating all my pain meds ( just tryin to use it for the hs flare). Started taking motrin every few hours to help my back and , was hoping, my flare. I spent two days on my back and would have starved to death if it had not been for my husband and son. LOL.Went to dr gordon, she lanced it and got a sample, and hopefully we can find something to fight this infection. she gave me another refill on my script, but this time for 30...oookkkaayy..I told her I still had some left..and normally, without my back going out, it would have been enough to get me through til at least a couple of days past when it would "normally" be considered "refillable". I talked with her about addiction and such, which irritated me simply because I don't WANT to have to take meds..I don't want to have to take something so that I can stand this abscess rubbing on the inside of my armpit or lady parts or butt! I'd rather not have to take stuff and then have to take probiotics and extra junk so that it don't burn my insides out! I hate it when drs try to act like we are drug seeking when all we are doing is relief seeking..If I could take something that wouldn't have all the side effects that my current meds do (and I DO mean ALL) I'd be first in line to take it. But I'm sure she's just concerned, like any good doctor would be. And things aren't going to get any better now that the hot days of spring and soon to be summer are here. The heat and humidity just kill me on the HS All of my areas are more active in spring and summer and fall..and crop up occasionally in winter. Plus living in a place that is humid, like NC can be really ramps up the flare factor.
Now, most likely because of all the stress throwing my back out, I broke out in a massive flare, 1 large one on the inside right buttock,1 at the opening of my lady parts, and two on the outside of the labia major. The one at the opening has started to drain, but the one on my butt has gone down in height, but increased in daimeter. Just friggin great! So now here I sit in agony again..trying to take my meds and some motrin, using hot compresses and hot baths to try to get these to drain already! wondering where the next one is going to pop up, cause I know it's gonna.
I don't know what else I can do on my end for this. I have gone gluten free, all veggie, all meat..oatmeal diets, rice diets..god I can't count all the 'diets' I have been on in all seriousness, dedicated, only to have it makes no difference in severity or frequency of outbreaks. I use Crystal Deoderant, take vitamins, don't shave, wash often with tea shampoo and use Hibicleans to wash,tried taking tumeric and zinc, and although I felt some better it didn't change how bad or how often they came.
I'm just so frustrated with all this crap I am seriously considering surgery. This is big for me because, after my last surgery, I was absolutely NOT interested in anymore cutting or dicing. I absolutely HATE having to have these fuckers lanced! It hurts so bad when doing it. Most of my experience with lancing has been in the ER and they always numb it beforehand, and that is agony my friend right there. I would say that our doctors should have to go through this one time, and they'd understand better our situation, but I could not..would not..wish this disease off on ANYONE! It is so painful I just couldn't.
I just feel like I'm having to deal with more than I should, sometimes feels like more than I can take and wonder when they'll find me babbling in a corner somewhere..lol
I'll make it through this..I don't have any other choice. I can't give up and there are people counting on me to be there for them, so I have to make it through.
Now, most likely because of all the stress throwing my back out, I broke out in a massive flare, 1 large one on the inside right buttock,1 at the opening of my lady parts, and two on the outside of the labia major. The one at the opening has started to drain, but the one on my butt has gone down in height, but increased in daimeter. Just friggin great! So now here I sit in agony again..trying to take my meds and some motrin, using hot compresses and hot baths to try to get these to drain already! wondering where the next one is going to pop up, cause I know it's gonna.
I don't know what else I can do on my end for this. I have gone gluten free, all veggie, all meat..oatmeal diets, rice diets..god I can't count all the 'diets' I have been on in all seriousness, dedicated, only to have it makes no difference in severity or frequency of outbreaks. I use Crystal Deoderant, take vitamins, don't shave, wash often with tea shampoo and use Hibicleans to wash,tried taking tumeric and zinc, and although I felt some better it didn't change how bad or how often they came.
I'm just so frustrated with all this crap I am seriously considering surgery. This is big for me because, after my last surgery, I was absolutely NOT interested in anymore cutting or dicing. I absolutely HATE having to have these fuckers lanced! It hurts so bad when doing it. Most of my experience with lancing has been in the ER and they always numb it beforehand, and that is agony my friend right there. I would say that our doctors should have to go through this one time, and they'd understand better our situation, but I could not..would not..wish this disease off on ANYONE! It is so painful I just couldn't.
I just feel like I'm having to deal with more than I should, sometimes feels like more than I can take and wonder when they'll find me babbling in a corner somewhere..lol
I'll make it through this..I don't have any other choice. I can't give up and there are people counting on me to be there for them, so I have to make it through.
Replies
Hang in there girlfriend. Oh I can feel your pain. The doctors don\'t comprendo the pain that goes with HS. Just a random idea, how about making a turmeric paste??? Or give it a test run on one demon and see if it helps. Feel better soon. xoxo, Colleen
Honey, I am just so sorry you are suffering. I def feel you on feeling like isnt enough enough!!! I know how aweful the numbing is but the cutting alone would be even worse without it. Indeed one mad literally said \"It\'s not the cutting that actually hurts as bad as you think it does, it\'s just anxiety about being cut\"
The world is full of crazies and thankfully we arent them lol!! I am praying hard for you and for you to feel my hugs alllllllllll the way to NC!!! Have you considered any of the meds such as Remicade or Humira???? I get my shot every other Friday and mine dry up really fast. It has truely changed my life.
Amber
Colleenie..I think I just might do that. Thank you for your kind words.
ajensen..I wish my insurance would cover Remicade or Humira...but unless my dr dx\'s me with rheumatoid arthritis they are not going to pay one red cent.
:(
If the abscess is bad enough and is to a \"head\" enough it really don\'t hurt (the cutting) as much as I thought it would unless they go too far in with the knife..but then again that is me..Although if I go to the ER they\'re damn well gonna numb that monster fore they get to go play with it..lol
Thank you both for your love, well wishes and support..my prayers and love right back at ya gals!
I have found that if I allow them to barely cut before they inject the lidocaine. it doesnt hurt nearly as bad and the flush keeps it numb longer. Also has your dr tried to write your insurance with case studies and research proving why it is necessary??? thats what mine did. THey wrote extensive letters and then my insurance had it go to a review board and i got approved. I know for sure they can get it done it just takes a whole lotta work on your dr\'s end. Can you ask if they would be willing to help you fight?? And thanks for letting us see your pretty face!!! I am going to kepp you in my thoughts and prayers!!!
Amber
No I don\'t think she has but I\'ll definitely have her check into it. Although state insurance is the hardest (maybe) to work with on medications being used for \"off-label\" purposes. And no problem on the profile..^.^ I figured if everyone else had the \"intestinal fortitude\" to show theirs..then I should too.lol.