Grrr frustrated and need to vent. I just saw my primary care doc this morning. I asked him if maybe the pain I have been dealing with that has been getting worse could possibly due to my syringomyelia (syrinx C3-C5) instead of fibromyalgia or if the syrinx might be intensifying my pain and if we should maybe do another MRI to see if the syrinx has gotten larger since it was discovered almost two years ago. He said if it was the syrinx I would have very noticeable neurological impairment so he didn't think another MRI was necessary. I was really hoping he would order one and if there was any change I would go see a neurologist or neurosurgeon again but of course that would have been too easy. Now I will probably be stuck going to see a neuro again to order the MRI then if there are any changes go back to the neuro and discuss if surgery should be done now or continue to wait and watch it. Oh well, what do you expect from docs especially with a condition they really don't understand. Such is life.
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Did he say what kind of noticeable impairment? I had no other symptom other than the intense pain and burning, so they ordered another MRI and found that my syrinx went from 1 mm to 5 mm in 6 months! I think they were surprised and that the only reason they gave me an MRI was to prove to me that it WASN\'T because of the SM. It was one of those times when you want to scream \"I told you so!!!\"
I hope everything works out for you.
He acted like you would be able to obviously notice it in problems with being able to move my arms and such since mine is at the cervical spine. Sorry to me by the time there is noticeable neurological impairment it may be irreversible. Thanks I just have to go another route if he isn\'t gonna help me. But you bet if there is change in the syrinx he is gonna hear about it loud and clear.
Cheryl
I sure know how you feel... I think I have a moron for a PCP, but if I didnt have all of my other conditions, he would be great. I just go and see my Rheumy from now on, even if Im sick. Its just the way it is...I think you need to establish a history with one specific Neuro Doc and just see him when you are in pain. Its just easier love. Good luck! I have my surgery for my spinal cord coming up and it took 4 weeks for them to tell me who to even see, so I do understanf your frustartion.