Well, I just signed up yesterday & posted goals tonight. I want to take life head on and live it fully. I've grieved about a tentative diagnosis of seizure disorder for almost 2 weeks now & for me that is enough. Time to stop it & move on with life. At least that's how I feel now. I woke up at 2:30 this morning to find my left leg had a mind of its own--raised a few inches off the bed and jerking. I tried to stop it but couldn't. Then the shaking started in the other leg, then my whole body stiffened & started shaking like a continuous STRONG shiver. I was aware of the whole thing & tried to stop it & couldn't. I move around in my sleep so my husband didn't wake--he sleeps deeply, bless him. He would have panicked anyway--I wouldn't have woke him if I could have. This has never happened before other than as a reaction to the super brite fast strobing lite in the EEG a week ago. Until now, I basically had what the doctors think is absence seizures (complex partial?), mild twitches, strange smells. This new one scared me. Now I'm ready to fight back. I hate being held down. I want my life, my car, & my machines back (all but life are off limits for now & I aim to keep it). So, I've set goals & all this is helping me feel emotionally better which I think is helping my body destress. Tomorrow is a new day-a positive start. I can still laugh at myself & my friends & I enjoy mutual poking fun gently with love-lots of laughs. It helps us all. Anyone want to walk with me?
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I love your attitude. Keep it up. I know it isn\'t always easy. Epilepsy kind of scares me. Having a sense of humor is probably the very best approach to take.
I get the smells too. They are simple partial seizures. (also can be called \"auras\" particularly when they are followed by complex or other seizures)