Time for an update, it's been several days since I've written anything. I hope you all have been doing well. I have started on Copaxone, but I'm only doing a shot every other day because my supply is coming from my doctor's office, not Shared Solutions. I am still on the waiting list for financial assistance, so until then my doctor is trying to secure enough samples for me. He gave me 2 months worth the other day, and I have another box coming from a friend who switched to Betaseron, so I've got enough for a few months anyway. (THANK YOU FRIEND!) My doctor is strongly urging me to try Tysabri, and I guess I will check into it, of course it all comes down to how much I will have to pay. It's sad when we have to make major decisions based in how much we have to pay, I think if there is not a cure soon or some of these drugs don't go generic, there are going to be a LOT of people in trouble because they can't afford the therapy. Just my 2 cents worth. On a personal note, Greg and I are hopefully going to be moving soon. We are downsizing, trying to get all our duckies in a row in order to be set for whatever the future brings medically. The only thing I am going to miss about this house is the spot I'm sitting in right now, looking out my window in the morning while drinking my coffee. This new place has a nice front porch though, so I guess that will be my new morning spot. Also, it's not right on top of the road like this place is, so it's more private, and quieter. I'm EXCITED!! I just dread the thoughts of packing everything up to move it, so we will be getting rid of a LOT of junk, I see many trips to the garbage dump in the future. I guess that's about all for now, I hope everyone has a great day!!!!
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I am so happy to hear that you are able to get your meds. Thank Goodness. Who Knows maybe the Tysabri would be cheaper in the long run...I know it is terrible that we have to make choices on our health with costs.
Love hearing you are downsizing and moving. Yes, it will be a lot of work. Hopefully you have friends and family that can help you out. Little by little. Junkyard will be doing a good business for sure. The front porch sounds delightful. I wish you well. Feel Better and Better. Love and Hugs
Deb,
I\'m one of those people who can\'t afford meds for my ms because my husband makes to much. We struggle to pay our bills every month, but he makes just over the limit for me to receive any assistance. Oh well, who said that life was fair. I\'m glad you are on copaxone. I hope that it works for you and you don\'t need the tysabri.
Good luck with moving. I moved 4 yrs ago and it was hard. I wouldn\'t want to do it again, although we have talked about downsizing too.
Hugs, Holly