Good Tuesday morning to all of you here at Daily StrenghtNot much to report just this minute but will add to my journal has the day progresses. Had a hard time sleeping last night, so went back to bed, when my hubby left at 6am. Might just finish some of the housework I haven't managed to finish yesterday, and go spend a few hours under my big old tree outside and read a good book.My pain level is not to high this am, I'm happy about that! I've come across a letter that describes a person's day living with chronic pain, like soo many of us here at Daily Strenght. It's very long but describes to the TEE a day in the life of a chronic person when the level of pain is 10/10. For those interested I will post here this am. I also find that this letter is a lot like the one I once posted in the hep c community, about when a person is on treatment.A Cold Day in Hell Medieval torture on ghastly hooks. Knives flashing. Flesh tearing. Blood drowns agonized pleading. Scramble down, screaming. Run away. Fire choking. Run fast, faster. No. Can't. Slowing down. Slow … motion. Like quicksand. Trapped in terror. Can't escape. Chest burning. Can't breathe enough. Can't breathe. Can't. Like a vise. It hurts. Moaning. I hear moaning. I'm moaning. I'm dreaming. Wake up. Wake up. Wake up! Wake up! Heart racing, head pounding, wild eyed scanning the bedroom, no knives, or quicksand. Breathe, breathe. Vise lets up a little. Pain bad. Burning. It's bad. It's a bad day. Pulsing. A bad day today. I can't afford a bad day. Throbbing. God doesn't care. It's a very bad pain day today. Aching. Good morning. You've got stuff to do. I decide to get out of bed and eight to ten minutes later, I'm standing. Bad idea. I take some medicine and go back to bed for a few minutes. Get up. This time only three or four minutes and I'm standing. Shaky walking, but not using the walls, like last time. Legs feel like they're in cement. I try to go to the bathroom, nearly fall asleep on the pot, and then make my way to the kitchen. Coffee and reading the newspaper, exhausted, trying to ignore the thousand needles and the crawly things. It amazes me what people think is important. All that wasted energy. I can remember when I had energy like that. The house is a mess. I'll clean it later. I promised to run some errands. Run? Hobble, limp, make it through. This car sucks. It's like a horse and wagon. Why has the weather been so bad lately-cold, dark, and rainy? What's that song line about the "cold hearted orb that steals the night, removes the colors from our sight; red is gray and yellow white?" Describes the weather and my mood. You know, I'd be able to park up front if I had a permit. Thanks for nuthin' doc. I hope household goods are near the door. These tile floors are wet and slippery. What were they thinking? Can't find the kitchen supplies. Why isn't there an employee to help me? Bunch of kids standing around doing nothing. I find the manager and get some help. There's the supplies. Let's cash out and go. Waiting in line. The volume's turned up on my pain; throbbing, pounding like the bass in this little gang-banger's car. Could they go any slower? Now an old woman counting out her change. Jesus Christ. Shifting my weight on my legs, sighs and small grunts, face drawn and tight. I'm afraid I won't make it. You can do this. Finally, it's my turn. I suggest they should have two open registers. The cashier frowns at me as the manager looks on and I see myself through their eyes-a frustrated, bitchy, middle-aged woman, who thinks she's too good to have to wait. I want to scream, "That's not fair! You don't know me. This isn't me. The real me died when the pain was born. This is miserable me." I can almost hear my mom say, "You never get a second chance to make a first impression." My heart sinks as I consider all the people who have only met the miserable, bitchy me. I fight back tears walking to the car. Compose myself in the driver's seat for a moment. I take more medicine with yesterday's Starbucks. Yuck. I realize I can't physically turn around far enough to see behind me and slowly back out, just hoping. Some dirty looks, but who gives a shit. Now I feel empty and numb. I get some drive-through lunch so I can stay in the car and then on to my doctor's appointment. It's business as usual there. Patient number 666 here. Happy to fill out the forms for the 200th time. Doctor's only running a half hour behind. What a shock. Pretty, young staff complaining about their boyfriends and the patient before me. I want to shake them and yell, "It's not business as usual. I'm in agony over here and you're supposed to do something about it!" How did this happen? How did I become an angry patient everywhere I go? Why can't I just get my refills over the phone? Because they want more money, that's why. They sure don't spend it on furniture. These chairs are like sitting in church. By the time I get to the inner sanctum, I can barely walk or bend. I lie down on the exam table afraid I won't be able to get up again. He comes in on a rush of air, hurried, distracted. Look up, doc; I'm not in the chart. I'm right here. We discuss the procedure I'm having tomorrow. I describe some new symptoms but I can tell he's not really listening <http://dailystrength.org/treatments/Listening>. He mumbles something about the procedure helping with that and leaves the room. So far, I got nine minutes of his precious time. I realize he's not coming back. The nurse has to help me off the exam table. I have an appointment with the pain psychologist in a few minutes, but I cancel. I’m suffering horribly now. He'll probably think I'm being noncompliant. He sees me and asks a few questions in the hallway about the procedure tomorrow. I'll call to schedule a follow-up. I need to get home. Somehow, I make it to my driveway without killing anyone and all I can think about is the couch. I am done, spent, and miserable. I hurt so badly. I feel sweaty and nauseated. Couch. Sweet couch. Here come the spasms as I start to relax. I turn the TV on for background noise hoping desperately to nap and then the phone rings. It's my daughter. She tells me how important it is that I stay busy and that I get out of the house more. She tells me about a friend who had the same problem and saw this doctor in Houston who got rid of it. She'll get his name for me. And maybe I should try this new church by her house. For the nth time that day, I want to scream, but I don't. Tossing and turning, I don't sleep, but the pain volume settles into a steady, faded roar that I can mostly deal with. I did stop going to church sometime after my pain started. I pretty much feel royally shafted by God. I married, raised a family, and worked my ass off. I don't deserve this. I don't want to think about what I'm supposed to learn from this. I know bad things happen to good people, but this is just wrong. The old anger wells up at that woman for causing my injury in the first place, but I push it away. I can't remember if I took my pain medication two or three times already, but I take another dose so I can do some light chores before my husband comes home. I tidy up a few rooms a little and decide to tackle the dishes. Partway through, a dish starts to fall, and I grab it before it hits the floor. Horrific, rending, excruciating pain that makes me see stars. Bile burns the back of my throat and I choke back the urge to vomit. Slowly, I make my way to the couch. Breathe. Breathe. Oh my God, what did I do? I'm so tense; every muscle in my body has a charley horse. The tears come freely now. I'm devastated. I can't seem to do the simplest things anymore. I'm getting worse; not better. I feel so alone, so utterly, completely alone. I'm lost in my own private hell of pain and doctors’ appointments and trying to act as if I'm like everyone else. I feel like an alien, observing the rest of the world with this detached numbness that would become rage if I let it. I see it all so clearly now with true perspective and wisdom. Either you hurt or you don't. If you hurt, you’re screwed. If you don't, shut up. Get over it. It's not as important as you think. The waterfall slows and stops. I hurt a little less, but I am exhausted in a way that a good night's sleep wouldn't touch. I feel vulnerable, open, and raw-like a child facing the closet bogeyman. Inexplicably, I dose off for a few minutes, awakened by a far-off voice that moves closer. "Honey, you fell asleep. Were you making dinner or should I order?" Even I understand how this must look. Feeling like a zombie, I stagger through the messy house, splash some water on my face, and start to cook, something, anything, while looking at the half-washed dishes. Over dinner, he's complaining bitterly about his boss and some new project. I can hear the words, but I have to struggle to put them together and make sense of the story. Knife, fork, and salt-pick them up, and set them down. You see, everything is normal. You can do this. How was my day? I squelch the urge to tear up again. "It was okay. I hurt a little worse today. I tried to keep busy." He says inquiringly that we are invited to a poolside barbecue with some friends this weekend. I shrug and say, "I'll try." He asks if the doctors are helping me and suggests that maybe he'll come to my next appointment. I say, "That's fine," knowing it will never happen. We sit in front of the TV and I can tell he'd like some stress-reduction sex, but he can tell it's not going to happen. We go through the hurt routine for the thousandth time. No guilt tonight. I sit and watch beautiful people doing beautiful things that I used to love and was good at. They take it all for granted. They don't know what they have, or that it could be taken away in a millisecond. Feeling abused and defeated, I trudge upstairs to bed, with an extra sleeper in my hand. My meds kick in and as I begin to drift, I review some of the day's events and settle on the pain shrink for a moment. He asked if I was afraid I wouldn't wake up after the procedure tomorrow. He means well. He actually believes that because he read some books he understands me. But, he is really freakin’ clueless. I'm not afraid I won't wake up tomorrow. I'm afraid I will. Copyright 2005-2007. Dr. Tim Sams. All rights reserved
Replies
Wow!! This is awesome...Exactly in detail...I hope that I can help someone in need and comfort someone in pain...Thanks friend. Pam
so sorry that you are hurting so bad
wow that story was like the way I felt when I first got health problems
hugsssssssssss
gerri
That is such a moving story. Even though I don\'t deal with cronic pain, it makes me realize just what I am able to do. The sad thing is that I can do more and I don\'t. When I do the cleaning at home, I will think what a blessing it is that I can do this without pain. Thank you so much for opening my eyes! Hugs Jane
Thanks Mckenzie, I could of wrote that myself, I can for sure relate , No one really understands Unless they have been there, and then sometimes it is forgotten when the pain goes away, But with chronic pain, It never gets any better, but you know that ,
Have a great day, ! hugs and prayers Sharla
Oh yes Sharla, I do know!
As I was writting in my journal yesterday, I was saying that as soon that my pain medication wears off, I have to wait till my next dose to continue my daily housework.
Someone who doesn\'t have to deal with daily pain doesn\'t know how we can really feel on some days.
We do have good one, but if we push it, just for one day we can pay with the next 3 days, so I must learn to not push myself and take my own advice to people and listen to your body, nap if you need a nap.
The best way to go is to take it:
One day at the time
Whew! that is powerful writing. I\'ve been in pain now since \'82: I\'m alive bec. I had a 2 yr.old to take care of. Sickening part was having so many specialists in total denial- when I got Legal Aid!. Medical Profession are like Mafia. Finally got help in New Zealand. Injections every 2 mths. Bur spine\'s collapsing, so it aches all the time - I\'m so ussed to it that sometimes I don\'t notice -Have sympathetic GP & get Panadiene Forte (acet with codiene). Oh! late , Bye JaneD.