Well it has been a bit since updating this journal. I'm still waiting for Retuxin approval as CPKs are still at 3000. I have a blood test this week, so I'll see next Monday. I am still doing PT on land once a week and PT in water once a week, and then my own warm water therapy 2 a week. Really working on stairs. I practised getting off the floor at the PTs office last week...not easy! But I still worry about falling, so I needed to practise. I also still need a nap every so often, but as I taper prednisone it varies. I am down to 17.5 mg a day from 80mg two months ago. Now the taper is slow. So the rather long slog getting muscle strength back has been from day one with this disease, and looks like another 6months. Then to maintain! So onward. I am so happy to be working again, although estimating energy levels are a hard guess, sometimes!