Sorry I've been away going threw PC H***
PC is going to the shop tomorrow , yeah!!!!! it is only a couple of months old and it has had one thing after another go wrong with it. They are not making money off of it so it is a lemon. I am hoping they give me a new one, I know one thing I am not getting another one from there. It seems like I use the pc more now for watching tv show and coming to this site, I depend on it I write everything on it and print out stuff.
anyways......
I am over my cold and Bruce is over his flu. My bladder infection is gone, the infection is almost gone at the site of my super pubic catheter, my white cell count is 6.something so it is going down. Things are starting to happen, I get my cath tubes changed Thurs. On Nov 11 they do echo cardiogram in prep for the chemo and nov 29 get the next dose of chemo. I am not so scared about this dose
I am settling down here at St. Mary's. Making new friends and getting involved in groups and activities. No longer wake up scared not knowing where I am. I can sleep with the light off now. It is hard waking up in a strang place not knowing where you are, you hear different noises and know that you are not at home. I no longer wake up when they open my door to check on me.
I'm not sleeping well, this past couple of weeks. I'm in soooooo much pain, the doc has increased my pain med's and it has helped some. But still not sleeping, took sleeping pill two nights ago. I did not fall asleep any sooner but the next day was so tired slept most of the afternoon, and last night was up longer then ever, so no more afternoon naps or sleeping pills.
The weather has changed we are now getting normal fall weather. The first part of september was like summer never left, warm sunny days. They took out the air conditioners but I got sooo hot the nurses ask maitence to put it back in my room. Today it is cool outside and they have the heat too high and I got too hot again but this time it snuck up on me. My vision got bad everything was blurry, my thinking was confused, and I was laughing at everything including spilling my drink on myself, the only way I can describe it is to be drunk very drunk. I do not know how it snuck up on me, I did not feel myself warming up.
Had another great visit with the Hubby. We played games, talked and then went to a coffee shop. My wheelchair goes into the shop tomorrow, they are changing the foot pads, they are also putting gel pads on the foot boards, and putting a roho roll under my knees making the seat longer. They are also cutting my right arm rest to make it shorter so the controller will be closer to me so I will not have to stretch my arm to reach it. I am also hoping that they will put on the tie downs so I can take the access bus again. If so I will be going home every sat, to spend the afternoon with Hubby and my dog,
They are slowly customizing my wheelchair to make sitting less painful. It has been hard this past year because my body has been changing so quickly. Soon as they get one thing done they need to change it to something else. So heres hoping the changes help me and do not need to change anytime soon.
PC is going to the shop tomorrow , yeah!!!!! it is only a couple of months old and it has had one thing after another go wrong with it. They are not making money off of it so it is a lemon. I am hoping they give me a new one, I know one thing I am not getting another one from there. It seems like I use the pc more now for watching tv show and coming to this site, I depend on it I write everything on it and print out stuff.
anyways......
I am over my cold and Bruce is over his flu. My bladder infection is gone, the infection is almost gone at the site of my super pubic catheter, my white cell count is 6.something so it is going down. Things are starting to happen, I get my cath tubes changed Thurs. On Nov 11 they do echo cardiogram in prep for the chemo and nov 29 get the next dose of chemo. I am not so scared about this dose
I am settling down here at St. Mary's. Making new friends and getting involved in groups and activities. No longer wake up scared not knowing where I am. I can sleep with the light off now. It is hard waking up in a strang place not knowing where you are, you hear different noises and know that you are not at home. I no longer wake up when they open my door to check on me.
I'm not sleeping well, this past couple of weeks. I'm in soooooo much pain, the doc has increased my pain med's and it has helped some. But still not sleeping, took sleeping pill two nights ago. I did not fall asleep any sooner but the next day was so tired slept most of the afternoon, and last night was up longer then ever, so no more afternoon naps or sleeping pills.
The weather has changed we are now getting normal fall weather. The first part of september was like summer never left, warm sunny days. They took out the air conditioners but I got sooo hot the nurses ask maitence to put it back in my room. Today it is cool outside and they have the heat too high and I got too hot again but this time it snuck up on me. My vision got bad everything was blurry, my thinking was confused, and I was laughing at everything including spilling my drink on myself, the only way I can describe it is to be drunk very drunk. I do not know how it snuck up on me, I did not feel myself warming up.
Had another great visit with the Hubby. We played games, talked and then went to a coffee shop. My wheelchair goes into the shop tomorrow, they are changing the foot pads, they are also putting gel pads on the foot boards, and putting a roho roll under my knees making the seat longer. They are also cutting my right arm rest to make it shorter so the controller will be closer to me so I will not have to stretch my arm to reach it. I am also hoping that they will put on the tie downs so I can take the access bus again. If so I will be going home every sat, to spend the afternoon with Hubby and my dog,
They are slowly customizing my wheelchair to make sitting less painful. It has been hard this past year because my body has been changing so quickly. Soon as they get one thing done they need to change it to something else. So heres hoping the changes help me and do not need to change anytime soon.
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