anniversary
Its been 12 months since diagnosis. I have been on steroids for 46 weeks, gained 13 kg, and been on Imuran for 8 weeks. I am back to 8 days a fortnight. I am so tired. My heart isnt inanything. The house is a mess, the garden is dying and I am seriously considering giving up my middle management position in Nursing. Because of this I am feeling blue and wondering if I will ever get back to 'normal' whatever that is. I have tried so hard to not let my condition affect work, but it has been noticed that my heart isnt in it anymore. I imagine the stress from work isnt helping me and I am tired of coping the flack for all the problems of the world. Wish I could see the light at the end of the tunnel. Nice to be in remission but it doesnt feel like it.
Replies
Judenic i so hear you... I am in remission too and only on 5 mg of medrol now. I have good days and bad days. I found much relief and improved energy and attitude with the Dr. Joel Furhman Eat to live Diet. I then progressed to Super Immunity protocol, and i am getting well. I have lost 40 lbs, which is like 15kg. I feel like myself again. I use oxygen at night and it improves my body pains and ability to do more the next day. Might that be an option?? I have an oxygen condenser at home that i use at night. I can do more each day and i recover faster. Maybe you need to work less?? I don\'t know how that works where you are... Is there a less intense job you might be able to transfer into?? It is really hard to stop altogether. I have not worked in years, but even the though of it gives me pause. I cannot even manage our household with two teenagers well now.
This is the time to hire some help with the garden and the house. Use paper plates, and cut corners where you can. Maybe Imuran is not the magic medicine for you. It totally put me to sleep and i had to stop it at 2 weeks because i was not able to get out of bed or think.
I am not sure i would call your case remission... You may be stable on meds but that is not remission. I am almost off the steroids i call that remission. I am doing well, increasing strength and endurance over time. Is that happening for you?? It may be time to consult with your doctors again...
So all that is to say I hear you, it is so difficult, and you are right to be frustrated. Eat well, do what you can and rest, rest, rest...
Sending you patience and strength, Shawna
thanks for caring. Hate the lassitude side of this illness. Maybe it is the Imuran that is stopping me thinking straight. Will be dropping my management position and just do the nursing. Go to work do my job and then go home. SOunds easy. I laugh at the thought of roast pork on paper plates, thanks for that. As for the garden. Just got to remember that weeds are only plants growing in the wrong place. Best embrace them too. take care.xx
I can very much relate you your situation. I am in so called remission too, it\'s a medicine managed remission and I do not feel like my old self. I can do a lot more than I could when first got sick, but no where near the energy I used to have. It sounds like cutting back at work will be good for you overall. I have really had to re-evaluate my priorities and I have learned to walk past some messes that I used to never be able to live with. I think for me the qigong and meditation I do is my source of energy (and lots of sleep!). I can\'t use paper plates either, especially since I enjoy using the pottery that I made. Lucky for me Mark does the dishes for the most part. Just wanted to let you know you are not alone and I am wishing you good health and happiness.
Hugs
Maruska
thanks for the message. I think I was meant to have a family of boys who couldnt care less If I dusted or not. My biggest thing is letting down my collegues and work mates. Will give it a few more months, get thru accreditation, have a holiday and then make a few decisions. I may go back to my first love of midwifery at the end of the decision making which would be nice. Have a wonderful director of nursing so will talk to her. Good luck with your health. .xx Jude