I just woke up from a short sleep, and thougt I would write a short entry into my journal.  All my clocks are flashing and nothing is on.  I guess we had a power outage for some silly reason.  I also woke from severe pain and more pain!!!!!!  My level of pain now in the high 8-10 range constantly is driving me crazy and I keep having to take my pain meds which are sometimes reaching high amounts a day.  This is really concerning to me as I hate taking any meds, but I know that I have to to try and be as normal as possible, and also to try and get through every second of every day with this incredible pain (insane pain) I call it!!!!  Does any one else have this pain level 24-7???? I know that in August my dr. is going to try the lidocaine injection by i.v. and sure have my hopes up re: that matter.  I guess I shouldn't but I have nothing else to look forward to, to reduce this increcible shit. I mentioned this a while back in my journal and someone asked me how it works.  Well, I go into the e.r. of the hospital closest to me and I receive an i.v. on my hand and I'm hooked up for the slow injection of lidocaine to slowly go through my body, after a couple of hours at the right dosage is instilled into me. They let me leave and I would be keeping the i.v. in me at home for the next 2-3 days then I go back to the hospital and they remove it and hopefully, amazingly, with God's love I should have quite a low level of pain, if any ( I can't imagine).  I guess this is supposed to last for about a month and then they do it all over again!!!  I know if it sounds too good to be true then maybe it isn't.  But I trust my Dr. 110% his wife also has fm/m.e. as I do and I guess I have nothing to loose, except for the unknown of the long term effects on my body are they deadly or not???? We have no way of telling as this is very new a dr. from somewhere around the world is doing this now for the past 5 years so I sure hope if any long term sideaffects would have happened by now???Hoping for a miracle in Alberta, Canada  Any comments would be greatly appreciated or questions?

Replies

deleted_user
deleted_user

I do..I just journaled about it! I know how you feel 200 percent!!!! I live with severe, unrelenting pain too! I pop pills too just to try and have some quality...never heard of lidocaine in iv??
deleted_user
deleted_user

I have been getting worse also,so I know exactly how you feel!!! I also hate if I have to take an extra couple meds,cuz then if I run out,I am really in trouble. I know none of us get addicted to our pain meds on purpose-we just live with an out of control disease that causes so many mental and physical challenges,it gets unbearable!!!Why doesnt the medical society take this as serious as it is?? I have come to realize that if I dont take anything for pain(I am 8-10 pain scale daily now)I will die 10 yrs earlier from the wear pain takes on ones entire being. So please take care,I am here,and I totally get it>Your dear friend:Korynne