Hi, this is cutesy again. I want to thank everyone that has sent me an e-mail and tellme a bit about themselves. I'm so glad that I finally have others to talk to re: fm/meI went to my fm/me group last night (wed.June 13) and we had a meeting re: thechronic fatigue society is in great need of volunteers on the board of directors and they can't find enough people to help. As everyone is too sick to offer any assistance.The idea of them folding is quite disstressful. If anyone out there have any ideas ofhow we would receive help for the board, I would greatly appreciate it! eg. where tofind more volunteers? I hope everyone is doing not too bad today. I pray each andeveryday for all of the people everywhere that have this frustrating chronic PAIN!I also am curious what meds people are taking, and how well they are helping?I myself am on Perkoset, I have tried basically everything that I know of and myDr. is very caring and knowledgeable on this illness, his wife also has fm/me andhe has now started a pain clinic close to where I live, since he sees me as a patientI am currently waiting to go through the program. Also, he has a psychologist heworks with at the Pain clinic, which I have seen on a one on one basis, but only fora short time as he charges $145.00 an hour! Outragious! His wife also has fm/me.I guess I should count my blessings as I know and have talked to many people andthey can't even find a descent Dr.! And I have been their myself for many yearstill I moved a little ways out of my city and someone mentioned his name. I try andhelp others that I talk to to find them a descent Dr. of some help somewhere.I guess I have to go for now as I am getting a lot of pain everywhere just being onmy new computer, which I am computer illerite. Prayers for all cutesy.
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It\'s now 8:40p.m. on wed. June19. I was just going over some of the comments from some of the friends I have found in this group, And although I don\'t have very many the ones that do comment back are truely angels. When I feel so isolated with my illness and my friends the ones who take the time to call me once in a while and chat for a while on the phone or occassionally meet for coffee. They really don\'t understand how I feel! I am thankful for the friends that I have found on here so far, and very blessed to talk to someone with fm/me. Elavaney, I read a bit more of your journal and yes majority of dr.\'s are very much doughheads when it comes to fm/me or chronic pain. They seem to think we are faking it!! Why in the hell would we go around faking this insane illness!!! I wish! And I also feel for you as you said you have \"no life\" I used to feel like that very much then I think of my husband, and 2 daughters, and my grandchildren and although I can\'t do to much with any of the ones I love, which does break my heart. I know that I am an important part of there life and I could be a lot worse off! My step-dad had been in a nursing home for a few years now, and very sick at home (he couldn\'t get off his recliner)my Mom went to see him everyday and fed him breakfast, lunch and dinner (parkinson\'s) She said he was her soul mate and we all could see that very much and we loved Pop\'s very, very Much. He passed away on May 24th/07 and we are all mourning the loss of a kind gentle man always with so much love to give and never complaining, all the nurses at the nursing home were crying and other patient\'s. Even my Pop\'s would say once in a while how he was useless and no life But, the moral of this sad story is he was alive and he gave much caring love and we returned it back 110% So, even though he couldn\'t do much with us, he gave so much in every other way and we were so close to him always. So I think that when I feel useless and can\'t do anything with my husband, daughter\'s, grandchildren, I know that I am special in there life and they are truly precious in mine.
P.S. this is not always easy to do when your feeling so much pain and can\'t think too clearly. Sorry for going on for so long, I hope you haven\'t fell asleep, Maybe what I have gone through and have gone through in my life, might just help you see the other side! God Bless You! and you are very precious and needed in this world! Cutesy
cutesy: It\'s now 2:15p.m. on Monday June 25th and the weather here in Alberta, Canada is RAIN,RAIN, AND MORE RAIN! OOOH! this weather hurts me! I am wondering what others have tried and are trying re: Pain meds? I am on Perkoset and it seems to help to a certain degree and sometimes it doesn\'t help at all! I also have tried acupuncture, massage, rehab clinics pain clinics, herbal remedies, and on and on with no help! Also has anyone outthere heard any news of any testing on fm/me??? I am going to be trying lanocane/i.v. in August, has anyone heard much on this kind of relief?? Hope to hear something back! Thanks for the time!