Im feeling frustrated today because I want there to be a "cure" for this, want to be able to do something that truly fixes it and I dont think that is going to happen. Dont know yet what meds I will be taking and am praying for patience as the Drs and I sort it out and await other tests. Had a good talk with my kids and husband, Im so encourged by them and proud of how they responded to our explanation of what is going on with me. Just feel alot of guilt that I am not able to do what I want and feel I need to do for them whenever I want/need to do it. It is hard to deal with that. I want to be energetic and carefree and spontaneous. It is sad to me to feel like I am way older than my years.
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I just saw my regular Dr and came home for upset and discouraged. He did not even have my report from the rheumatologist and seemed to be downplaying the rheumatologist\'s recommendations. My lymph nodes are swollen and Im having a flare up yet he suggested I exercise more and try the eliptical and reduce my stress. Basically I felt like he was shining me on! My rheumatologist is out of the office this week so I cannot speak to him til next week. My reg Dr waants to put me on Lyrica again even though I did not have success with it a few years ago. Im feeling so angry and discouraged and tearful!!