Hello all.  I called the specialist I recently saw and asked them to fax their findings to me.  My local neuro was very vague about what was in the report.  In the report it states, "She has at least 9 subcortical lesions on her left hemisphere and at least 8 lesions on her right subcortical hemisphere, a couple of them are juxtacortical. There is one lesion in the pons which is seen on at least 3 cuts and is in addition to the other 17 lesions."  This is certainly a far cry from the four that my local neuro said he saw.  Keep in mind that the specialist I saw works at the MS Center for Oregon at OHSU.  I am inclined to believe her long before I believe my local neuro, who seems extremely hesitant about my diagnosis.  So here is a rundown of all of the doctors I have seen in the past six months who all believe it MAY be MS (probable is the term they have all used):  Three neurologists, a D.O. (who is my new PCP), and a rheumatologist (who also consulted with an infectious disease specialist to rule out Lyme disease and the radiologist who read my first MRI and said it was consistent with MS).  Both of the radiologists, at two different MRI facilities, have said my results are "consistent with a demyelenating disease."  I just don't understand why my neuro is soooo hesitant and unsupportive.  I STILL haven't heard back on when I can start the Copaxone.  I called them last Thursday and again yesterday.  Also, I don't know if I mentioned this, but I also got my chart notes from my local neuro, and in the objective part he says he can detect an afferent pupillary defect on the left.  Sorry if I already mentioned that in my last entry.  This is yet ANOTHER sign of MS (all other possibilites have been ruled out by two different ophthalmologists).  I am just so confused still!  I wish I had a clear answer.  Sorry for obsessing.  I really hoped I was going to be able to move past this and get on with things, but the visit with my neuro last week left me with more questions instead of a clear answer.  Thank you again for being there for me.  As always, you are all in my prayers.  ~Jlynn

Replies

deleted_user
deleted_user

OHSU has some of the best!!! Believe them
deleted_user
deleted_user

hugs hugs i am keeping you in my prayers....
deleted_user
deleted_user

Oh JLynn, I\'m so sorry you\'re back to not being sure again. I know it\'s excruciatingly hard, but it seems like, from how the doctors agree & disagree, this could go on forever, if you don\'t put your foot down. I hope not, but doesn\'t it seem like enough is enough? Maybe that\'s not possible, by I imagine you\'re thinking that way. In reality, you do need to know for certain. I\'ll keep praying, & God will answer, in His time. (Hope it\'s soon :) )
Love, Debi
deleted_user
deleted_user

I don\'t think you\'re obsessing! It is,after all,YOUR health you\'re talking about.You need to know what the tests show,& to have drs who understand the findings so they can help.Remember,there\'s always a second opinion.Find an MS specialist thru the state medical board or something.It\'s important to start on medication that can help you.I pray for your health and wish you well.God bless.