I had my follow-up MRI last Friday and got the report back yesterday.  It says, "IMPRESSION: Findings consistent with a demyelating disease.  The most impressive lesions is in the right pons."  In the FINDINGS section it reads, "There are no T2 bright lesions and there is no abnormal enhancement.  (On the last MRI there were many T2 lesions.  I don't know what this means).  In the left hemisphere, there are fie punctate areas of signal increase at the gray-white matter interface in the mesial frontal, mid forceps minor, mid centrum semiovale and posterior parietal periventricular locations.  In the right hemisphere, there are focal areas of increased signal in the white matter of the right periventricular frontal, centrum semiovale, right occipital and right thalamic regions.  There is a diffuse area of bright signal int he right half of the pons just above the superior cerebellar peduncle.  This rather large area measures approximately 1.3 cm in diameter.  (This was on the first MRI and has been the most 'worrisome' one for the two neurologists I saw)."   Can anyone help me with the interpretation?  I don't see my neuro again until January 3rd.  I can't wait that long!  I have waited long enough to find out what is going on.  Every doctor I have seen, or who has been involved in this some way--three neuros, one rheumy, an infectious disease specialist (they thought originally I had Lyme disease and so my rheumy consulted with the ID), my PCP, and two different radiologists (had the MRIs at two different facilities) all say "It definately looks like MS."  THe specialist at OHSU, Multiple Sclerosis Center for Oregon, said "probable MS."  She strongly believes it is MS, even to the point that she would start me on Copaxone if I was her patient (she was a consultant for my local neuro).  I am thinking my neuro will confirm in January and start me on Copaxone.  But until then, any thoughts?  Also, what can I expect from Copaxone?  Is it a daily injection or weekly?  Thanks for ANY advise or insight you can give me!  This has been a long, awful road.  It essentially started 12 years ago with misdiagnoses, but it really started to get bad last April when I started to actively seek answers.As always, you are all in my prayers.  Thank you for being there for me.  I am sorry I haven't been here much for you.  I have been wrapped up in this so tight that I can't seem to claw my way out.  I wait anxiously for your input.~Jlynn

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deleted_user
deleted_user

I wish I had some answers for you, but I know little about MS. What I can do is pray for you, which I have been doing. I can imagine the frustration has been close to impossible to live with. I\'ll pray that you will have peace, patience & soon have the answer to your long awaited prayer.
Love, Debi
deleted_user
deleted_user

Yep, sounds like they\'ll DX MS. Right there is all they need \"IMPRESSION: Findings consistent with a demyelating disease.\"

have you heard my ramblings on LDN? :) http://www.larrygc.com/mystory is my story since 4/17/03, was DX RRMS 7/31/02, LDN is the only thing I\'ve taken. http://www.ldninfo.org is the main site. I refused all the CRABs. Good luck :)
deleted_user
deleted_user

I agree with Larry there, although I am not in the medical field. Copaxone is a daily injection, I have not been on that but others here have. I have been through all of the interferons and I can say they make me feel \"crappy\" over all. I started on the LDN Larry refers to on Nov 13, 2007, and I already have seen a difference, while they were subtle, they are still an improvement. I have not felt this good in years! I was dx\'d in 1994, and I had a few half way decent years. But, things are looking up! I will know whenever I have my next MRI. Date to be determined. DD
deleted_user
deleted_user

Lynn,
I wish I had some good answers for you but it sounds like the myelin around the nerves are deteriorating which is consistent with MS. I to have that condition at the pons which is where the 5th nerve going down the right side of your face starts, thus causing the TN.

I am taking Copaxone which is no big deal. It is a simple daily injection just below the skin. The first shot and occasionally other shots do cause a heavy feeling in the chest and seems like it is hard to breath. If the injection does make it into a mussel that mussel will start to twitch but it does not hurt. I generally do my injection around my stomach. The first shot I was instructed to inject myself under my arm above the elbow, do not do that because that does hurt. The nurse that came over to show me how did not know what she was doing. She didn\'t even tell me to wait for the alchohol to dry before taking the shot, that stings!!! On the auto injection devise I keep the depth setting on 6 to 8. The nurse who showed me how put the setting on 10 which is way to deep. I am angry to his day that they sent someone over who didnt know what they were doing. This feeling only lasts for about 10 minutes or so. I take my injection just before I go to bed. I do not have any ill effects from the Copaxone but that\'s me. The Copaxone only
discourages new symptoms and new areas of delimitation. It does not stop your existing condition unfortunately.
If you have any questions please feel free to send me a message Lynn.
Take care,
Mike
deleted_user
deleted_user

HUGS HUGS ..GOOD LUCK ...PRAYERS....MARIE