Just wanted to say that I am feeling better about things today. I knew it was coming, but it was still a bit of a shock. I tried to explain to my son that I have things that the doctor will try to help me with, but my mom turned around and told him I was fine. So much for trying to be honest with him... As I said in a discussion topic, if he believes my mom that I don't have a health problem, he will start to think I have a drinking problem! lol I stumble around and run into walls, lose my train of thought, throw up every morning, and sleep four hours in the middle of the day when the fatigue hits. Well, my hands feel relatively good today, so I'm gonna take advantage of that and get my charts done. I hope all of my friends on here are doing well today. ~Jlynn
Replies
How old is your son. He may be old enough to understand that mommy has an ilness. Sorry, but I think your mom is wrong unless your son is to young. You know your son better than your mother. Honesty is the best policy under most circumstances. My 7 yr old neice knows what is wrong with her uncle and asks alot of questions. She was even interested in the daily shot of copaxon I have to take and watched me take one once. She wants to be a nurse so she can help her uncle, what a sweety.
Glad to hear your hands are doing better.
Mike
Glad you are feeling better today :) I agree with Mike, maybe it is time for a serious conversation with her? My son and daughter also like to watch me do my shot. Hubby and I talk about things regardig my sx\'s, etc... in front of them. They are funny, when we shop, they help steer the scooter. When we bump into things, and people are around they say \"sorry, my mommy has MS\"! Lol. I hope things turn out better with your mom.
My son is 7. He\'s a smart cookie. He knows I am ill. Impossible to hide it. I\'ve been dealing with it actively and openly for over three years. I promised my son I would never lie to him about it. I feel that my mom has undermined all of my efforts to ease his worries. Now he is getting conflicting information. Who is he supposed to believe? He sees me deal with this daily, and then my mom says I am fine, so what message does that send? I know we shouldn\'t worry our children unnecessarily, but trying to hide something that is so obvious seems like it would cause even more worry. ~Jlynn
I agree with the others. Sounds like you need to have a tough love conversation with your Mom about who\'s in charge of what your son hears. Is that hard difficult in your relationship? It would definitely be best for your son. He\'s got enough on his plate already, without having to deal with confusion. Your a wonderful, loving Mom. You\'ll do just fine. You go girl!
Debi
Im glad that you are feeling better today. Im glad that you ae being honest with your son. Kids are so smart. Just continue to be a good mom and you cant go wrong!!! Hugs, Niecy.
honesty is best just dont go into too much detail.keep it simple.tell you mom that you are his mother.you will handle it.it must have been so hard to hear those words.i am here for you...you are loved...marie
glad to know you are better today friend....and thanks alot for visiting my blog....have a wonderful weekend...hugs lups
My aunt was diagnosed with ms almost 30 years ago and she\'s still walking around doing her thing! I hope now that you know you can find something to have a lot more good days. You could be very honest with your son and just tell him that grandma wants to protect him by saying things are better/different than what you\'re saying. He\'s old enough to understand that, and you need to talk to her about it. Maybe she\'s trying to convince herself that things are better than they are because it\'s hard for her to accept it. I hope you have another great day tomorrow!
I agree with cinaflower on this one. Your mother is afraid. She doesn\'t want to share fear with your little boy. And of course she\'s not really dealing with your problem.
My three daughters hear a lot of strange things from their grandparents, but they\'ve heard the truth from their own parents all of their lives ... so they know the opposite when they hear it.
It\'s hard for the children to deal with my new illness, but it\'s better that they face it with me, than they pretend there\'s nothing new going on. That would lead to further suffering later in their lives and probably lots of regrets.
I\'m all caught up reading your journal now. Thank you Jlynn for contacting me. I\'ve heard Lyrica (not sure how to spell it) is the way to go for many MS sufferers who also have TN.
XoXO
C