The MDS /neurologist that my husband has been seeing since we moved to Texasover 2 years ago has moved her practice. She has joined the Baylor Hospital system in Dallas.  The problem is that he has to have his shots of Botox for the Dystonia every 3 months.His last shots were in September and we had an appointment next week. That was stretching the time limit.  We were called on Monday and told that the insurance we have will not be accepted and we would need to find a new neurologist. Finding someone that gives Botox shots is a big problem. Since Monday I have been trying to straighten this mess out. We have to have a referral from his previous doctor, the records have to been sent to the new neuro, they have to be reviewed to see if the doctor will accept him as a patient, new neuro has to contact insurance to get the Botox shots approved and then we will be given an appointment. Now in the real world of hurry up there is no "hurry up" for this process. No one cares how my hubby is  struggling with the symptoms of Dystonia. Shots that are supposed to be given every 3 months will most likely be 4-5 months at the earliest. Before he started taking Botox he was pretty much bedridden and the pain was bad. I just can't believe that a doctor would do this to a patient. We have known for 6 months that she was changing locations and that her practice would move. But we were not told about her being in the Baylor Hospital system. The doctors with Baylor will not take medicare patients or the medicare advantage plans. If we were given the information in September we could have been working on this for over 3 months. This has really been a struggle this week. When I am not crying I am on the phone trying to speed things along. Is not working.......... Sorry for the long journal but it is soooooo frustrating. Prayers would be appreciated.