By the late afternoon I start to get tired and slow talking. I dont like how I feel when I get this way. I never heard of Myasthenia Gravis, until I was told I had it. No one knows how I feel. I try to explain how I feel but know one understands.
I have not wrote here since June 29, alot has happened. I had surgery to take out my thymus gland and tumor on September 13, 2010. Since my surgery my MG has gotten worse. Tomorrow I am going for my 2nd round of IVIG treatment. Its going to be for 5 days all day long. Im not looking forward to it. I have been out of work since the September. Today I am feeling crappy. I am so tired, I wish I could talk. Having problems eating and weak in the arms and hands. I wish it was a good day. Maybe tomorrow.
Replies
I have not wrote here since June 29, alot has happened. I had surgery to take out my thymus gland and tumor on September 13, 2010. Since my surgery my MG has gotten worse. Tomorrow I am going for my 2nd round of IVIG treatment. Its going to be for 5 days all day long. Im not looking forward to it. I have been out of work since the September. Today I am feeling crappy. I am so tired, I wish I could talk. Having problems eating and weak in the arms and hands. I wish it was a good day. Maybe tomorrow.
I am so sorry to hear you are having such a bad day. I hope tomorrow is better and ivig helps alot. Please keep me updated
Thoughts and Prayers
Thank you. I will keep you updated. Good luck with you. Thanks again for caring.