hmmmm monday has come and gone and now i sit here infront of my screen wondering how the heck am i gunna get the motovation to go back to work tommorrow .Its not that i dont like my job infact i think my job is great ,(and now for the but) im tired of felling so stiff and sore in the mornings .Its like im an old man for goodness sake, but i just look at the photo of my family and think if they can put up with this grumpy,rickety,mental case of a man then damn it so can i .They keep me strong and grounded i feel so sorry for them having to put up with my mood swings and the monthly trips to the hospital to have my injections and the after affects of them ,i know my boys would love there dad to play with them but sometimes i cant because i feel unwell but i do as often as i can , i can see it in there face the look they get and it hurts me ,as all of us would like to know why .I know it sounds like the poor me syndrome but bloody hell why didnt the doctor who took the blood test over two years ago check the results then maybe my tumor wouldnt have been so big and i could have had the op and felt better
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Hey Swampy its so not the poor me syndrome you have probably tried to be so strong for your family and I see that look from my kids when I had to say I will try and sometimes have let them down more so before my drug they were let down when I was unable to see the school play.But its good to feel angry over our condition because then it can become determination that this condition wont win.Heres a big hug for you and tommorrow we will drag our weary bones and face another day all together on this long journey and smile as im trying to unblock my hover which has a pickled onion stuck in the tube dont know how that got there
Hello Swampy, I am sorry you are so down. As I tell my son tomorrow is another day and I hope it will be better. I feel so sorry for all of you. I am sixty-five and Doughboy can not keep up with me. His joints are so bad. Walks like he is old man. He has bad headaches too. IT is going to get better for all of you. He is so down and wants to give up, but the next medicine might help. I will be thinking of you. Here is a hug! Doughboy\'s Mom
wow swampy...i had not read your journal...here i was busy thnaking you for getting me going again...I hear doughboy\'s mom..i took my mom to chicago before I was diagnosed...she is 78 and she outwalked me...I am still unlcear about your acro history...how big was your tumor...so I don\'t know much about the medicines...I know I keep mispelling mine..anyway be kind to yourself...mctrjt sending you caring thoughts...
Oh Swampy sweetheart! I don\'t think there\'s anyone on here who can\'t relate to how you\'re feeling and as JokeyJ said anger does transform into determination. I think the mood swings and hormone imbalance are inevitably going to cause us all to have good days and bad days but we will all get through this cause I firmly believe that things like this only happen to mentally strong people, we are life\'s fighters and we\'re all here for you sweetheart. I cried when I read about your kids cause my little girl is only 3 and she can\'t understand why some days I can\'t swing her round or even sit on the floor and play. I used to dance and be able to carry just about anything and now I\'m an old lady in a 30year olds body! Very depressing but every day I\'m grateful I had her before this disease took hold otherwise I wouldn\'t have the best reason in the world to get up everyday!
Keep smiling, lots of love,
Kate x