I have felt so great for the last three weeks, I haven't felt this good in years! I went off the Betaseron a month ago to prepare for the Tysabri and ever since I have felt great. I am supposed to start the infusions next week but now I am beginning to think I shouldn't. If I can feel this good with no meds why would I want to go back to feeling so crappy on meds? I know that the meds can prevent further attacks but at the same time my quality of life is terrible on the meds. I am seriously about to call and cancel my infusion next week. We've been dealing with a whole lot of issues for the last several weeks. The worst is with Mo's mother up in NY. She ws rushed to the hospital three weeks ago when her kidneys failed. She went on dialysis then and showed some recovery. Mo flew up there to do what she could for her and help her brother out. After tests they found she had lymphoma and it had spread throughout her body. Mo is home now but is very upset and I am trying to take on as much responsibilty as I can for things here at home. We got a call last night and found out that Mo's mom is not a candidate for chemotherapy and that the cancer is causing the problems with her kidneys. The doctors placed a stint in her kidneys trying to keep them functioning but that was only minimally successful. The prognosis is now only a matter of weeks. That hit Mo like a ton of bricks and I am giving her all the support I can. Peace......................David
Replies
WHAT A KICK IN THE STOMACH. I AM SO SORRY FOR MO.
RE MS TX-I QUIT AVONEX ABOUT 1 YEAR AGO, FEEL GOOD, DON\'T WANT ANYMOE CHEMICALS IN MY BODY, IT DIDN\'T HELP OR HINDER BUT NOW I\'M DOIN\' LOTS OF PT AND MY GOAL IS TO WALK UNAIDED. I FEEL DRUG COMPANIES, THEN DOCS WANT TO PUT FEAR IN US BY SAYIN\' WE\'LL GET WORSE IF WE\'RE NOT TAKINMG SOMETHIN\' BUT I GOT WORSE TAKIN\' AVONEX SO WHO\'S TO SAY WHAT\'S RIGHT. TAKE CARE OF U AND MO.
OMG, I am so sorry for all this pain for you and your Family. I know how much you are helping Mo and being supportive of her. This has got to be so difficult to hear all this in such a short time. I should think Mo will be going up to see her soon. I am so sorry.
I understand where you are coming from and I think if you want to cancel this Therapy and try going it with meds, you should do so. Sometimes, those meds cause more problems then help. I am happy to hear you are doing so much better since off the Betaseron...Good Luck to you...I will keep both of you in my Prayers. Love and Hugs
We will be going up for a stay in NY so Mo can be with her mom. Things could move quickly with her mothers cancer. We are working to get her in hospice care now.
Hugs to you and your family. My thoughts and prayers are with you during this difficult time. I\'m here for you, my friend, whenever to need me.
Hugs to both of you in this difficult time. It be stressful for you both so please take care of yourselves.
Hugs to both of you
Sue