I finally have an appointment with Dr. Kaufman at the MS Clinic at Carolinas Medical Center. After years of not getting a straight answer from my previous Neurologist, I obtained the Radiologist reports on my last three MRI's. Shocking is all I can say. I was led to believe that I had some damage from lesions but not to the level that I see on the reports. "Innumerable", "lesions in numbers to great to be counted", "extensive white matter lesioning indicative of very advanced MS". These were all the discriptions on the reports, never was I told the level of damage that my brain had suffered. With hope Dr. Kaufman will be able to offer me some aid. I think that I should go to a different treatment, Betaseron seems to not be working. Tysabri seems to be a good choice. I will let you know what we decide after tomorrow. Peace...............................David
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Glad you got the news straight and not a run around. I am sorry its not the news you want to hear but maybe now you can get the right help. Huggggggggggggssssssss!
I am glad you looked at your own reports. I did the same thing and found that I had been lied to about numerous things(I also got my medical records), being a nurse they did not want me to have them but I insisted. I found that I also had pneumonia and an abnormal heart rhythum. No one had ever mentioned those things to me before. Keep up the investigative work, and take care of yourself.
Love and hugs,
Debbie