I'm trying to get in to see a new neurologist.  I found out that there is an MS Center located at Carolinas Medical Center in Charlotte.  It is run by a dcotor that specializes in MS.  Many drug trials are run through there.  I checked out this doctor on-line and found that doctors and researchers around the country consult him when they questions or concerns, so I feel good about the possibilities!  My lab results came back good, no problems there.  My MRI, though, showed 2 more active lesions plus the ones on the optic nerve and on the left frontal lobe.  Will have to consider changing MS meds, possibly Tysabri. I feel so lost now, all the time confusion.  Could not remember how to make coffee this morning!  I don't recognize my neighbors.  These are people I have lived next to for eight years.  I have to ask Mo who the people are that spoke to me when we are out in the yard.  I am having real difficulty cooking now, and you know how much I love to cook.  Simply can't do the do in the kitchen.  Nerve pain in my arms and legs, Lyrica has helped with that.  I started having sharp, stabbing pain in my face, around my mouh and nose.  It comes on suddenly, like I am hit with an ice pick.  Some bladder problems, can't control the old sphincter.  Vision is better but not good, I can see to get around, but not to drive.  Wouldn't want to run a router table or a big shaper anymore, I'd get the nickname Lefty real quick, Steve will understand that one.  Hands camp up into balls whenever I do any work. Anyway, enough griping and whining, didn't want to start a pity party, just wanted to update you on what's been going on with me.  I miss being in regular contact with you all, the messages and hugs from everyone has meant so much to me.  I have the best friends on the planet, all of you are the fabulous!  Big HUGS to you! Peace.........................David 

Replies

deleted_user
deleted_user

Hi David, I think this is fantastic new about the MS Center. My Dr too is one of the top 10 in the USA. Lucky to have them, he probably knows all those Drs too. Good the lab checks out ok. I understand that the Tysabri is a wonder drug and many people are benefiting from it. I hope this will bring you help. I understand your pains, and the cooking too. Hopefully this is just a short setback and everything will resume to normal soon. That is why we are here, grip all you want. Take Care and sending load of prayers and good wishes your way. Hugs and Hugs, LOL
deleted_user
deleted_user

Hi David
I can relate to alot of the problems that you are having with the MS especially the face, and the ice pick. I hope that you find the releif that I have. I hope that all turns out well with you.
Larry
deleted_user
deleted_user

The MS Center sounds great. When I was first dx I went to an MS Center that was origanated and run by my neurologist. He left last summer to start a new center in Ohio and his replacement is not starting until this summer. I have often considered going to another MS center in Phila. but my dr. now is only seeing MS patients and my MS nurse is great. Do what feels right for you. Things can only get better.
deleted_user
deleted_user

That is great you have the opportunity seeing such a renowned specialist! I hope that you get some phenomenal help there! XOXOXO
deleted_user
deleted_user

Good Idea to check out that ms center and see the new neuro. I have several friends on tysabri and they seem to be doing alright on it. Maybe that is the way to go. I\'m sorry that you have more lesions and that they are effecting many areas this time around. I hope that it gets better soon. Hugs, Holly
deleted_user
deleted_user

I am sorry that you have more lesions. I, too checked out the dr in Charlotte. only heard good things about him. Do you have an appt yet?
take care
debbie