scared

Well the last few days have been a little better but.....I have to admit I am scared. I am so short of breath with any exertion, I think he is going to recommend oxygen if this doesnt improve with the prednisone burst.
he is setting up the appointment with the transplant assessment team, it should take about a month. i have been over on the huff and puff site and it is not encouraging.
this could progress alot faster than I had thought, I'm kind of frozen and I don't know what i should be doing. I am going to Toronto on Tuesday and I will have to face my daughter with this decline, i hope she doesn't notice too much but I know she will. She is only 23 and not ready for this kind of thing.....I'm not ready for this either.