I got angry this morning when I saw some responses to my discussion posting asking about a new medication. As a recipient of this fine and wonderful disease that I am so happy to have now, I would share any info that i would be qualified or knowledgeable over to help any of my other fellow comrades. I got really pissed and hot headed over some narrow minded jerk thinking i am just pushing sales for the pharma companies, How can one learn answers w/o asking questions, and why would one be so cynical at the thought of something new that might just be our answer. I hastily answered w/o really cooling off first. For that I apologize to all. I had my checkup w/Dr. She has ordered up another round of steroids. I only know of 2 others that love their steroid treatments. I hate them. I haven't slept all night, didn't go to work today because of it and the nausea, and wooziness are returning. The Dr. is going real slow with this round because I got so sick in last month that i couldn't take the full treatments as usually prescribed. I seem to be regressing yet in this exascerbation. This is into my 6th month now. I hate this disease, I am in my first year of dealing with this diagnosis. It scares me silly that I won't walk someday, I'm soooo sick and tired of hurting. I just wasn't prepared for the negativity and cynicism from asking a question at a support sight that can give not just me but all of us hope. I sure hope I can get some sleep and have a better day. There has been lots of positivity in response to my question, too, so I really should just focus in on that and pray for others that are losing that hope and only see the ugly side of the pharma companies.
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hang in there Melanie and again I hope you keep posting new information.
hugs
april.
thank you, i needed to hear that and needed the hug. Thanks again. I hope you are having a better day.
mel - in your discussion post- which had an excellent response from \'Dr.O\', was a post from \'tohelpothers\'. That is what set off the tirade of comments, not you. It just happened in your discussion. \'tohelpothers\' has appeared in several other discussions with the same lines. \'Use this product and you will get better\'. Same approach used with many MLM products; they come and go. This is the wrong community to do this to! Your question is realistic. Her offer is not. She is not with a pharma company! Stay with ppl you know who will have a 2way converation with you. It is neither you or your question that is being dumped on.
As has been said my many: \'MS sux\'. Your fears are justified. Just don\'t dwell on them in anticipation! Never lose hope. We\'re survivors.
Melanie, I say ask all the questions you want and don\'t worry about the negative responses you get. I\'ve had a couple of those myself and I was really irked for a while also. Now, I just ignore those with negative comments and focus on the others. I never look away from something new to help fight this disease. I may not always agree with the new stuff coming out, but I at least keep an open mind. Any information is always appreciated. Don\'t give up on your search for something to fight this disease.