Haven`t written much lately.Some of the time I just can`t think of what I want to say.Maybe that sounds like I don`t have anything to say but that is usually not the case .It is just so hard some of the time to put my thoughts into words that make sence to me.I have been having a lot of problems with my mind not knowing what I need to do around here and it seems like everytime I go to do something I just can`t concentrate on what I am doing enough to get the job done.I have had to take a lot of breaks even if I do start something because of getting the cold that I have and it has just knocked me flat most of the time.I did go to the Doc the other day and she suggested that I get into some kind of pain management program because she dosen`t know how to treat my pain.At least she was honest about it and didn`t try to tell me that I should try this drug or that other one.She is a good Doc and I think she is trying to understand ,which is more than I can say for my NS that still thinks that I was asking him to do some kind of surgery on my back agian.When all that I needed him to do was let me know how the fluid in my spinal cord was flowing or if it was blocked.Some of the time I think these Doctors just don`t listen and then they try and make you feel like you don`t know anything.I am still thinking about going back to Denver just to see my first NS and see if he can recomend someone closer to here.I thought this last NS would be a good one since he did know what Syringomyelia is but I think he is just to full of himself to even get the small things right.I don`t know how many times I tried to tell him that I was told in Denver that I needed to have MRI`s done with contrast done every year to see if the syrnix that was operated on was still flowing or ir it was blocked.And that my symptoms had gotten worse,the burning in my hands has gotten so bad that they feel like I am burning them with a match all the time and I keep getting this pain in my legs that is like someone sticking a knife in my thigh and twisting it until I scream.I just don`t know how to get him to understand this.He wrote me a small paragraph about me not needing surgery until the symptoms get to the piont of causing paralasis[sp]but if you ask me if it gets to that point then it is to late because at that point they told me that I would not be able to get back what was lost, ie it would not return to normal.When they did the surgery on my neck they were real surprised to find tha most of my strength had returned even for a little while.They said then that it was not a surgery that is meant to restore the function af your limbs but it is meant to stop the progression of the symptoms.I guess this Dco just missed that day in Med school.Later,Monte

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deleted_user

just hi. Hang in there.