I recieved my Syringomyelia packet from ASAP this afternoon and am watching some of the DVD`s to learn more about this affliction that I have.The people at ASAP wrer real kind and caring ,the person that I talked with has it herself and know`s a lot about it.I am still learning more every day because it is something that I am going to have to address agian in the near futureand I would like to know as much about it as possible,So that if I have to have onother sugery I will have more information and knowledge about it.I have asked them if there is a neuro-sugeron in the Lubbock,Texas area and they said that my G.P. would probably know that better than they would.I am glad that they have this information that you can get and the proceed`s go for further studies in SM and Chiari Malformation.
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I got the information packet from them too. I haven\'t seen any DVDs yet but I am sure they are very helpful. It helps at least when you can understand your condition(s) better. I was diagnosed over two years ago with a syrinx and possible chiari 1 malformation and I still am learning and trying to learn as much as I can. Take care and good luck.
Cheryl
knowledge is power, learn all you can..........debbie