I'm so happy to see this group and thankful to those who started it!
I was diagnosed with MRHK in 1985 and had McIndoe surgery the same year. I was 15 at the time.
A few years later I went to college, met my future husband, got married just after we graduated in 1991, and we adopted our wonderful daughter in 2000.
Things have gone pretty smoothly for me in terms of my MRHK. A few bumps along the way, but not nearly as troubling as I thought it might have been at 15. I would be happy to share my experiences and answer questions from anyone who is getting ready for surgery or worried about what life may hold afterward.
I have also been lucky to know someone else (my best friend's sister!!!) who had MRKH throughout my adult life. We've shared stories, compared notes, and talked about good and bad obstetricians we've had along the way. Having someone to compare notes with and ask questions of has made me feel less alone and much more "normal." I'm looking forward to talking to more of you "MRKH gals" so that we can compare notes, find good doctors, and learn from one another.
I was diagnosed with MRHK in 1985 and had McIndoe surgery the same year. I was 15 at the time.
A few years later I went to college, met my future husband, got married just after we graduated in 1991, and we adopted our wonderful daughter in 2000.
Things have gone pretty smoothly for me in terms of my MRHK. A few bumps along the way, but not nearly as troubling as I thought it might have been at 15. I would be happy to share my experiences and answer questions from anyone who is getting ready for surgery or worried about what life may hold afterward.
I have also been lucky to know someone else (my best friend's sister!!!) who had MRKH throughout my adult life. We've shared stories, compared notes, and talked about good and bad obstetricians we've had along the way. Having someone to compare notes with and ask questions of has made me feel less alone and much more "normal." I'm looking forward to talking to more of you "MRKH gals" so that we can compare notes, find good doctors, and learn from one another.
It looks like you're the one who started this group and I'm so thankful that you did. It makes such a difference to see others who are living with MRKH and feel like you're not the only one!
I'm curious how many of the people in the group feel that they have or have had a gynecologist who gave them accurate, helpful, and complete information about MRKH. I was diagnosed and had McIndoe surgery in 1985 and my doctor was good, but I don't think there was as much information back then or at least it was harder to find (no internet back in the old days!).
I also have scoliosis and a few other minor physical differences that I now know are related to MRKH. Back then, my doctors all said it was just a coincidence.
I have had very few difficulties since my surgery, but I'm curious to hear about the long-term success or issues of others. Someone once told me that most people have no problems for the first 10 years after surgery, but that there are occassional problems after that. I'm wondering if that fits with the experience of others in this group.
spw1