Vasovagal Syncope Community Group

This Group is for people who faint or blackout when bp drops too low to get oxygen to the brain.

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Windturtle9 03/06/2017

I hope this group is active. I will support anyone who posts here because it is so hard to deal with this. A. Fainting is embarassing. B. It scares people and they call for help and it becomes expensive. C. It is somewhat debilitating to not know what triggers it. I know a little bit of my triggers but not all. Nausea is a trigger and vomitting always makes me pass out, pain is a definite and motion sickness is a usually a definite. I wake up exhausted, miserable and disoriented. The thing that's most frustrating is I like to be on the go, my job is demanding and sometimes I just can't do it. I know almost like a sixth sense when I'm gonna have a bad day. I just hate missing work, having to say no to activities I love like horseback riding and hiking or snowshoeing. I am not on any medicine for this and don't know how to minimize my episodes. I have started taking Pedialyte diluted in my water and I think it's helping but not sure. Overall I have had more episodes in the past 3 months than previously once or twice a year. I'm interested in what others know.

neonxena 06/04/2017

There's anot her group called neurocardiogenic syncope which is basically the same thing and that one seems to have more people and be active. Yes I suffer too with what u are going through. I used to be on fludrocortisone after a positive tilt table test. But then had to get off of it while pregnant and bf. May have to get back on soon. Had an episode recently and passed out. It sucked and brought back bad memories.

Pink25 06/18/2017

Hi, I just joined today and definitely looking for an active group for support. I am very similar to you in that I have a demanding job, like to stay active and hate that my vasovagal syncope is always a factor in what I can do. When I did my tilt test the doctor told me to just drink Gatorade for electrolytes, so Pedialite should be very helpful for you. I also use Nuun electrolyte tablets from Whole Foods, as they have way less sugar than Gatorade (although I think a bit of sugar helps me as well). I've been dealing with this for a few years now and had an episode today in a yoga class, which prompted me to join this website for some support. No one seems to understand how difficult it is to live with the constant worry that you might faint. And when I'm doing something active with friends like hiking or at a music festival, I feel like a burden having to constantly worry about having water, electrolytes and protein.

girly1 06/27/2017

I had a positive tilt table test they said I have neurocardiogenic syncope. I took fludrocrtisone as well it didn't work for me. I was also on diltizam and another beta blocker. Nothing has worked for me so far. I just drink tones of Gatorade and pray for a good day. I'm waiting to see the cardiovascular doc in a few weeks. I try to be positive I'm a wife and a mom and I work. It is so hard to stay awake and not pass out when I stand up.and forget anything like bowling or being in the sun it drains me and I have to stay in bed. Good luck to u

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