i have been suffering with symptoms for over 5 years and 3 years ago went to see orthopedic doctors and neurologist and got no where! I finally gave up and started doing physical therapy for TOS and this helped for a while then last year all the symptoms came back with a vengeance! Stabbing pain in right side of my neck, and shoulder blades, waking up all night with arms falling asleep, and burning pains from my neck down my arms. The doctors decided I had a bad cervical disc and they did a replacement in August 2017 and after the surgery I began to have a new symptom appear, when my hands are down to my sides my arms and vessels fill with blood and burns then when I raise them up my hands turn cold and white! I have seen physical therapy for 3 months, 4 specialists, 2 mri scans, a ct myleogram, nerve blocks, and trigger point injections without any help from any of this! None of these doctors will help me nor do they seem to care! It’s the worst feeling when you are in agony with no one to help! I’ve had 2 doctors say it might be a slight case of TOS but my nerve conduction study is normal so they dismissed it!  The last doctor said I have cervical ridicuopathy ( but none of my scans show pinched nerves) they all say Pain management! And I can’t get an appointment with them for 10 weeks!  I’ve gone as far as possibly traveling to the Mayo Clinic to get diagnosed but I’m a single mother of 3 and that’s just not an option at this point! It’s just bad enough to go through the pain alone but when you add the stress of the doctors not caring it’s unbelievable! I feel like I’m in the twilight Zone! Glad you all are here to share your stories, I hate that anyone has to experience this but sometimes it helps to know your not alone!!