Thoracic Outlet Syndrome Support Group
Thoracic outlet syndrome (TOS) consists of a group of distinct disorders that affect the nerves in the brachial plexus (nerves that pass into the arms from the neck) and various nerves and blood vessels between the base of the neck and armpit.
Hi my name is Michael i am 31 and live in the uk. I have had minor TOS symptoms for years but as I am painter and decorator I thought the pains, tingling and numbness where because of my job and only effected me of a night. I went to see my GP when it started to effect me of a day time. He didnt know what was up with me and sent me to physiotherapy. The first physiotherapist did not know either and sent me fo tests for carpel tunnel and i had my bloods done then referred me to a physiotherapist at the hospital same happend again and reffered again. Only this physiotherapist thought it might be TOS as my pulse dropped on elevation. She sent me for a X-Ray to see if i had cervical ribs but i did not have any. All this was over a 8 month period i was then sent for a MRI on November 5th i remember the date as it was Bonfire night, i was also reffered back to my GP. I went to see my GP and told him they think it is TOS every person i had told didnt know what it was an never heard of it. I was taking paracetomol and ibuprofen at this time when my doctor game codeine and naproxen as the others had no effect. He also reffered my to see a Vascular surgeon at the hospital and said ghe surgery was not bad and i would be back in work 2 after. It got to December and the pain was getting worse i had tried massages, contour pillows and a brace for my back to help with my posture it was a waste of money. I went back to my GP he changed me medication to paracetomol, tramodol and naproxen. Still not relieving any pain finally went to see the surgeon in January. I could remember counting the days down thinking i was getting fixed that day. He looked at previous scans and examined me and sed go for a CT Scan and nerve conduction test come back in 6 weeks. I asked him for stronger pain relief but he said no as Morphine was the next step and i would be waiting to long and i would be addicted. This is when my Pec minor pains stared. I had slight pains by my armpits and would travel across my back, but it was like having a heart attack when i walked or picked anything up. I was not sleeping and still not the pain jus kept getting worse and spasms of night. The only thing to take any pain away cannabis this just took the edge. I had not worked since December and had to join a DMP to cover my debts. My family where starting to get annoyed as we had no money i am always complaining about pain and carnt go out house. I went back to see my surgeon he said all tests come back clear i told him about my pec minor and he took no attention to it he said he wanted a second opinion and was sending me to a different surgeon. He said go back to him in 3 months and try and do physio and told him i carnt lift my arms or walk so how am i ment to physio. He told me it shouldn't effect th way i walk. I then told him when i walk it feels like am having a heart attack still took no notice. I booked in to see my GP as i was not happy. He sent me the hospital for a ECG to check my heart it came back all clear the doctor said it was my pec minor an gave me general anostetic patchs they do not work either. I am now waiting to April the 10th to see a new surgeon. I am currently taking 8 paracetamol, 2 naprosyn, 8 tramodol and 1 patch all does not work. Tried cannabis oil that didnt work either only normal cannabis smoking it takes off the edge but still carnt sleep. Just woundering will my life ever get back to normal stuck in the house like a prision in pain 24/7 when will it all end.