My name is Jordynn and I have been suffering from pain in the neck, arms, shoulders, trap and chest for almost two years. My worst pain is in the neck. Everything I read about TOS doesn't seem to attribute neck pain to the syndrome as one of the worst areas of pain. However, I saw a neurologist in California who said that I have it. I'm a little nervous because I have been told my other doctors that that particular doctor "diagnoses everyone with thoracic outlet syndrom." I'm not sure if I truly have it or just other symptoms. I am out of work on unpaid leave and fighting with disability companies to hopefully get some financial assistance during this horrible time. How have your experiences been with disabilitya and workman's comp? Previously I plaid years of basketball (not sure if that would be too repetative) and I work in office managment and administrative so tons of computer work. I keep wondering if I need to switch jobs. Have any of you found a type of work that allows you to survive with this condition? What modalities of treatment have helped you? My neurologist has a TOS vest to help keep the body in the right posture and position, but it is very expensive and I'm not sure if it would truly help. I would love to hear some of your input from people who understand. It is hard to live with such a horrible condition that people don't understand.
Thanks in advance for any input you can offer!
I am currently going through waves. I know it is over and sometimes i am ok, and othertimes i get so sad. I just miss him so much. He was my best friend. I still follow him on social media ( i know i shouldnt) and he has been posting pictures and he hasnt even posted pictures in years and he looks so cute, it just breaks my heart all over again. I just keep thinking why didnt he want me why...
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